Showing posts with label Anxiety. Show all posts
Showing posts with label Anxiety. Show all posts

Thursday, December 1, 2022

You're the MOM



     Eric brought me home from the hospital on the evening of Nov 19th. On Tuesday, the 29th of November, I drove him to the surgery center, just a mile from my house. I wasn't allowed to go back with him until he went into surgery like he always did with me. Before he returned, we hugged and said, "I love you; see you soon." 

    I went home, waiting for the surgery center to call and say all was fine, and I never heard from them. Eric called me and said the center decided to keep him one more night. They had been giving him fluids, but he could not go to the bathroom. I asked about his chest pain and if he still had acid reflux. He said yes, but they were giving him Prilosec. We talked until he fell asleep, and I said, "I love you too; see you soon."

    When he got home, his face was white; he said he was lightheaded, but he could not sit or lie down. We walked during the night, and I could see he was in pain. I ordered smoothies for both of us in the morning, and he said it made him feel better. I told him I had to get my blood taken and I'd be back in an hour. I asked him if he thought he would be okay if I left him for the tests. He told me to go and that he would be ok. I handed him his phone; his walker was next to his recliner, but he hadn't slept all night, so I asked him if he wanted half of something to help him sleep for a while. Looking back on this, I am not one to live with regrets, but this was the biggest regret of my life, I wish I'd never left him.

    I wasn't home in an hour; the doctor's receptionist told me I was late and that my appointment was at Thunderbird Mayo Clinic. This was not a close drive, I worried about leaving Eric, but went against my judgment and left for the appointment. My daughter Kayla went to check on Eric. Then she called me back to tell me she had called 911. I was already on my way home but could not drive fast enough, my heart was racing, and I was scared.

    I made it home with firetrucks, an ambulance, and one officer, and my heart was beating as they rushed him to the emergency room: Kayla drove me there. When they got oxygen on him, he said he felt much better. We were there for several hours, and his blood pressure was going too low, then too high. He was able to speak to us and was coherent. I called Clarence Schaub and Kyhl Powell and asked if they could bless Eric. He loves them, so he was happy when they arrived. Soon after that, Kayla came back, and the ER personnel said it would be better if I left and got some sleep because it would be a while for his room to be ready. Eric begged me to go home with someone else; I told him Kayla had brought me and would take me home but that I really didn't want to leave him like this, I didn't want this to be the last time I could talk to him. Eric assured me he was well cared for, I teared up saying, "I don't want this to be our last conversation." Eric told me to stop talking like that, he would be fine.

    At 2:36 am, I received a call saying they had intubated him, and he was in an induced medical coma, and now he was in the Heart Hospital next door, but there are strict visiting hours in the ICU. I could not go until 9:00 am and waiting for that long was challenging. The last thing I said before I came home from the ER was, I begged Eric to let me stay; he said, "No, you are still recovering, I love you, but I'm in good hands and feel better. I'll see you tomorrow," I said, "I love you."

        When I first looked at Eric, I cried. He looked so vulnerable, and I KNOW he was scared when he couldn't breathe. Someone from my family is always with him. 

    The cardiologist, Dr. Greene came into the waiting area and was trying to talk to me, but Kaitlyn kept asking questions and standing in front of me while trying to give me information about Eric. He finally asked who she was, she said she was his daughter and he told her he needed to talk to me as his wife and Power of Attorney. Dr. Greene told us that Eric's arteries were completely blocked and calcified. It was possible that Eric had been having many little heart attacks over the years, and obviously didn't know about it. The doctor tried to cut through it with three different scalpels but could not budge it. He told us we were keeping him on life support to see if he could wake on his own, but if he came out of the coma and could breathe on his own, he had a long road ahead of him. I tried so hard to keep my emotions to myself but felt like I was not being respected by my children, Kaitlyn was rolling her eyes at every question I had for the doctor. She has had a problem with me for a few years, and I lost control of my emotions. I asked why she rolled her eyes at me, and her answer was "I roll my eyes at everyone." I continued in a harsh manner to ask her why she didn't like me, and why she was so mean to me. It started a horrible loud argument. The doctor could not tell us my husband who I have been with for over 40 years would make it through the night. It scared me so badly; Eric and I have always trusted each other but we have never discussed his investments. I knew about insurance and investments he and I had invested together, but I knew there were investments he made, and I did not want to lose anything Eric had worked on and loved so much, Eric is all about buying low and selling high.  My oldest daughter Kayla, said, "I can't believe you are worried about money when your husband could be dying. All you care about is Dad's money." ' I told her I know exactly how much money I will get from insurance Dad has always been good about keeping that up to date. From early in our marriage until now. I was talking about his investments and not knowing how to take care of any of that. How could she say something like that, my husband may be her Dad but she has no idea what goes through a woman's head when she thinks her husband is going to die. 

      It is now December, and I am hopeful Eric will make it through this and that even if we have to celebrate in the hospital I would, because this is his favorite time of year. When I'd get home at night there were always boxes from Amazon to bring in. I was trying to be aware of those to make sure each one of our grandchildren got a bean bag for themselves Dad and I thought that would be an easy gift and that the children would love it. When I opened them, I realized two were going to be too little for Recker and Ezra and I needed to return these and get bigger chairs for them. I had one day to do that so it would get to my house by Christmas. Then the next day I thought it would be a better day with Eric and with my children, but I was wrong. 

      I whispered to Eric how much I needed him and that I knew he was with his mom and dad, but not to get too comfortable up there because his family needed him, and that he and I still have a lot of life together. I played some songs from my phone quietly next to his ear. "I don't think I can do life without you, please come back to me."     

     In the waiting room was another story, I tried to be less combative but when Kaitlyn pulled her shirt over and said to me, "Look Mom, I don't have any garments on." She was trying to get a rise out of me. I said to her, "And...?" Why would I care if she had garments on? I knew she was trying to start something, so I said to her, "Why do you hate me so much?" Wrong question, I heard everything I have ever done wrong to her. Then I told her how she had hurt me too. This started an argument, Kayla told me, "But you're the mom." I wish I had a nickel every time I've heard that from her. Now I've heard it from all my girls. 

     Does that mean, my children are allowed to hurt my feelings, and be disrespectful and unkind just because I am their mother?  Kayla told me she is Autistic, and that one threw me for a loop as her mother I wondered why I didn't know about this when she was younger. I wanted to know what her doctor told her, and she blew up at me, she said, "So you think I'm lying? I don't have to show you my medical records." Because there is a lack of communication within our family I had no idea why she would be so angry, she was a mother of three boys, one with severe nonverbal Autism and one on the spectrum but he is high functioning. After that argument, I didn't hear from her for a year. When we finally did talk to me she tried to tell me how I was supposed to talk to her now. Okay, I agree with boundaries, but this was more than that, I was supposed to learn a whole new way of speaking to her after 34 years? Overnight, I was expected to speak to her as she requested. Dad and I talked about it and she had never said a word to him, he could speak to her like we always have. Why is he not held to a higher level? Because I'm the mom? She also said to me, "I was abused by someone, and it was in your home?" Very accusatory, I asked where? She said in our house in the Islands, when I asked who it was, she said "It is none of your business." Wow, I wonder if someday, God forbid, she finds out Recker was abused by a respite worker. When I watched him while she worked and she accused me of sexually abusing Recker, seriously? What is wrong with her? I would never touch one of my grandchildren or any child in that way EVER. It was then that I was no longer allowed to watch any of her children. That hurt me so badly, and Dad was angry too of all people in the world why in the hell would she think I would do such an evil thing to my grandchild? After that event, I wouldn't want to be alone with her children for fear she would turn me into CPS for something she 'thought' was real. 

     Back in the hospital waiting room, I decided after Blake started yelling at me that it was time for me to calm down and stay away from Kaitlyn, well actually all my children. Blake and my relationship has always been different than what I had with the girls of course they think he's always been my favorite. I said nothing to him. I know him, he can be as mad at me as he can and it's over, he tells me when I'm out of line, forgiveness is given on both our parts and it's over. My mom said that was exactly how I was growing up. These millennials have a new way of communicating and if it doesn't go their way, even if you are their mom, they are done with you. Kicked me out of their life like a piece of trash. 

     I spent some more time with Eric and then went home. I was crushed again just because I'm the mom. Why couldn't they say, "Mom that really hurt when you said ......" Then we could work on that? Why wait years and years to bring up things I don't even remember as a mother. I don't care what they think I was a good mother, and I am an excellent grandmother. I showed up at the hospital in the morning and all my kids were there, Kayla and Kaitlyn came back from visiting their dad and they said the nurses were doing something so no one could go back for an hour and a half. I watched as they ignored me but were perfectly had to order the right beanbags today. Kayla once again, thinking of herself, turned to me and said, "I can't believe your husband is dying and you are asking about Christmas. I can't talk to you. And I've told you how to speak to me." HUH? I just didn't want her children to be the only ones without a beanbag big enough for them. I guess because I'm the mom, It's not okay to ask questions about Christmas gifts that would have surely hurt their feelings if they got nothing, but it's okay when your dad is dying to be laughing at TIK TOK.

        I stood up to go see Eric and my girls blocked me saying, "Dad doesn't want you here, he said you are trying to kill him." I knew there was no way he said that, we may not be the perfect examples of parents, but Eric and I are in love and have been together for over 40 years. WTF was going on, I just knew Kayla and Kaitlyn had something to do with this, they would hurt me that much to get back at me ... just because I'm the mom. I was so embarrassed I ran to the EXIT to leave, and Haleigh followed me, she said, "Mom do you trust me?" My mind was all over the place. I had no idea what I said to her, but I do trust her. Haleigh is quieter in nature than any of the other children. Haleigh has been through the most with me. She helped take care of me when I was so sick during chemo and radiation, I will always be grateful to her, I ruined her senior year of HS.   

     The next day I came back, and the ICU guard told me I was not allowed in the hospital, that patients were at risk with me there, and especially my husband who thought I wanted to kill him. I said, "I am his POA, I would never hurt him EVER. Who put my name on this list?" She looked at me and said, "Kaitlyn, she is now his POA."   

     I was escorted out by security and asked not to come back. I was crying hysterically, and when I was walking to my car I looked up and saw my children watching me walk to my car.

     So now, I went home and waited for word about my husband but still would not be allowed in the hospital let alone ICU. I was hurt worse than I ever have been and what's worse I knew they didn't care. Blake came by the house that night ringing the doorbell banding on doors wanting to talk to me, but I couldn't, I was in shock still just staring around not knowing what to do next. I'm sorry Blake, I was in a whirlwind of emotions and did not know what to believe. 

      When Eric woke up, Blake called me, told me, and said he would be leaving for a rehab facility in a few days. I asked him if Dad had asked about me, and he said, "No, but you called me while I was in Eric's room and excused himself. When I came back in the room all he had to say was 'Was that mom?' I told him yes, and all he said was "Is she mad?" 

     He was awake and didn't want to know about me? It just didn't seem right, but my kids were in charge and taking over my marriage right before my eyes. I had no idea why he said what he said, I thought he was under life support. Now he's awake and it was obvious that I was not included in any choices about his care. After a couple of months, Haleigh called and wanted to know if Scott and Brian could come over and get his bed for where he was moving. I told her no if he wanted anything from the house, he needed to call me himself.

     And he did within five minutes. I told him unless he talked to me my divorce attorney had said nothing was to be removed from the house, which was no problem because that night someone tried to break in. The next day I went to Home Depot and took a quick course from one of the workers on what the best lock was and how to install them. 

    I told him I spoke with his financial planner that Eric always had me in mind when he made any investments and that it was better under these circumstances for me to take care of as much as I could now. I cried myself to sleep every night, and not once slept in the bed he and I shared.                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                             

    When I sat at home alone, I thought about how we didn't have a will written since my first daughter was born; I wasn't worried about money. He and I have discussed the insurance each of us would get if the other passed. But one thing we have never really talked about was his investments. I knew he had many, all with my name on them. Eric loves selling; his passion is getting a deal on the property, then turning around and making twice as much. I tried to explain to my kids I know the insurance policy on myself, my kids, and grandchildren-they will be taken care of. But they seemed angry at me for talking about dad's money; I told them this isn't about money. I have yet to learn about his investments. I've just always trusted him as a businessman. He never had to ask me about investments because I knew he wouldn't buy anything unless he knew we'd make money on it.

XOXO Monya BonBon



Friday, November 11, 2022

Meningitis




Eric took this at just the right moment.

    I'm on vacation as of 10 minutes ago. Eric is so excited about going away for a few days, as am I. We arrived at our condo in Mexico around 4:00pm. The weather was refreshing with a slight breeze from the ocean. The resort was quiet, and most importantly we found a great parking spot, Eric is having his second hip replaced on Tuesday, and we will have a few days to enjoy being together. Lately I've been so busy trying to finish "Pebbles in my Pocket," learning to let go of the things you can't control." and the "Happiness Junkie, #KindnessMatters. We haven't had much time together and we wanted time away.

          He rarely complains, but since his last surgery, he has had terrible acid reflexes that sound like they hurt. He said it hurt his chest. We stayed in the condominium but had so much fun lying on the sofa watching movies and keeping up on the Local Government election. We ate popcorn, snacks, and sandwiches for dinner, and then we went out.

           We had intimate conversations about the trials we have had and how after 40+ years we have served one another, forgiven one another, and learned more about each other, as far as our wants and needs we began writing our goals for 2023. We talked about our children, each one of them. Eric and I did our best to raise four responsible adults. Now it is their time to live the life they want and what makes them happy.

        We are both looking toward retirement and have written our goals for the next five years. He is so excited to start building our home in Mexico and selling a few condos, and then He surprised me with the layout of the house in Mexico and wanted to know my advice. Together we changed a few things, like bedroom sizes, bathroom placement, etc.

        On Monday, I woke up unable to balance, I ran into walls, and my right eye looked infected and bright red. I had a migraine like I've never had and eventually started having some hallucinations, people looked short, fat, and pregnant, even the men. I took a migraine medicine to hopefully help the pain as we drove from Mexico to the Mayo Clinic. On the way home, I spoke with Dr. Lettieri since it looked like it was an eye infection. I asked if we should come to County Hospital or Mayo Clinic. He said Mayo since the Maricopa Hospital does not have an ophthalmologist in the ER. then asked Eric to text him with an update from Mayo Clinic.

        In the Emergency Room, I was taken for a CT scan, lots of drug testing, and ordered an MRI. By now, my hallucinations were constant with my eyes open or closed. I could not take any pain medication because they did not want to alter the results, and medicines can do that. I was given a spinal tap, and I thought about my youngest granddaughter Florence, she has spina bifida, and I wondered how many times in her life she would have to do this. It helped me to stay still so the doctor could do this spinal tap quickly.

        I didn't get to my room until around 3:00 a.m. I texted Dr. Lettieri knowing he would be up and getting ready for work. Dr. Lettieri was in surgery at Mayo when I updated him. He came from surgery to check on me. He knows my story from the beginning to now. He found out who my Neurosurgeon was on duty and gave him the background. He told my neuro team this had nothing to do with my eye. Eric and I love Dr. Lettieri, Eric is always saying how lucky we are to have him on speed dial as we have had to use him several times. The Neurosurgeon respects Dr. Lettieri and was glad he called him so they could eliminate the eye as the main reason for the migraine and hallucinations.

        That night they took me in for the MRI around 10:00 pm. I asked Eric to go home, it's a long ride for him, and I wanted him to get home safely. He didn't want to leave, but I knew his hip was hurting, and he needed rest.

        The MRI was less than a fun time, I had to wear a mask in a tube that was already claustrophobic. It really scared me, so I closed my eyes and suffered through it. When they pulled me out to administer the contrast and dye. I asked if I could take off the mask, and the technician said since I did not move a muscle during the first round, it was okay for me to keep the mask off and it made an enormous difference. The pounding on my migraine made me throw up several times back to my room, and for the next couple of days...still had no pain medicine.

        Dr. Hasan, who is on my neurologist team, came into my room with Kayla and Eric, she finally had a diagnosis, I had viral meningitis. The swelling between my brain and the lining of the brain was infected and swollen, and this was what the hallucinations were coming from. Kaitlyn once again debated with a neurosurgeon through our family text. I did not have my phone, but Eric was reading it to me. Since Florence has spina bifida, she said the spinal fluid would not explain the slurred speech and hallucinations. It really hurt when Eric read that to me, A nurse happened to be in the room and then told my neurology team what she heard. She also heard me ask Eric if he thinks they all think I'm crazy, and he answered, "Yes."

            Dr. Hasan came to my bedside after Eric and Kayla left for the night. She held my hand and said the nurse told her about the conversation. She said, "I don't care if your family thinks you're crazy; you tell them what is happening to you, and the things you see are as real as they can be." Dr. Hassan said it is normal, and they've seen it before with meningitis patients. I thanked her for telling me this was normal. They ran every street drug test they could and knew I was not on drugs or that no alcohol use had happened. When the surgeon came in, he said Dr. Lettieri told him what was happening had nothing to do with any of the surgeries he had done. I also asked him to read the family text thread and tell me how to answer my daughter without causing more problems. His answer was, "I didn't get my degree from Google." I realized he read it the way I did like she doubted me without me saying anything about the contention this daughter has had about me for years. I decided it was not worth addressing, so I let it go. I just want peace and love in our family. But I was glad to know she was checking on me, I really think she doesn't like me.

        I felt like I couldn't get anyone to believe what I was seeing on the walls, ceiling, and floors. I asked Eric "Do you think the doctors think I'm crazy?" and he said, "I'm pretty sure they do, but I've known you longer than anyone. This is not normal behavior for you and yes, I believe you."

        The neurologist explained to me that from the spinal tap, they did the first night, they knew it was meningitis. Then they grew cultures from the fluid of the spine. I was told after the MRI my brain looked 'beautiful', and the infection was not in my eye it was in the brain area. They told me Meningitis is either Bacterial or Viral, one not worse than the other, simply different procedures to treat. If someone comes into the ER with bacterial Meningitis, they send them home with antibiotics. When it is Viral, they must first find out the source of where it is coming from, which showed in between the brain lining and the brain, for it can take 10 days to clear up, but they've seen three months of recovery. They said I could not return to work when I was released. I spent most of my vacation in the hospital.

I took another 13 days for MLOA from American Airlines. I'm nervous about Eric's surgery tomorrow. Since his first hip surgery in August, he's had chest pains and horrible acid reflexes. 

He has cared for me as my caregiver for so long, and now I will have a chance to serve him when he comes home tomorrow.

XOXO Monya Bonbon






Wednesday, June 24, 2015

Dr. Sal Lettieri Eye Surgery

 

WEDNESDAY, JUNE 24, 2015

Dr. Sal Lettieri's Eye Surgery

Tomorrow morning, I will enter Mayo Clinic Hospital for my 26th surgery. I'm having a lot of anxiety about this upcoming operation. I forced it so far into the back of my head, knowing we were going on a family vacation; suddenly, it hit me on the plane ride home. I'm not sure if it's because I realize what recovery will be like or if I am just so done with all this silly nonsense--it's like Groundhog Day, repeatedly.

I cannot wear my cochlear device. It is an excruciatingly painful ringing in my head and gives me terrible migraines and dizziness. However, I've lost most of my hearing in the left ear (the good one). I can't hear my alarm go off in the morning (usually, I can listen to that thing rings throughout my home's walls). I can't hear music, people talking, everyday things I have taken for granted. Although it is annoying, I will have to wait until after this surgery tomorrow with Dr. Lettieri. Hopefully, he will be taking the gold weight out of my eyelid placed in at the Cleveland Clinic (wrong size) and being upgraded to Platinum--I like to consider it an upgrade--GOLD to PLATINUM--, and I think I will save the Gold Weight--let's just see what Dr. Lettieri thinks about that......I paid for it, so why not take it home? That's the easy part; the more in-depth portion of the eye surgery is to fix the chronic dry eye--I didn't want to know the details about how that is done; Dr. Lettieri likes me to be informed of procedures--I frankly don't care or understand all that doctor jargon, so I told him "I trust you, just do it" I love and do trust him, I am in good hands tomorrow. Heather will be scrubbing in, too.... bonus for me; I love that girl.

Time to get to bed now. I have 5 hours before it's time to check in.

Monday, September 29, 2014

Find Me-Frozen Inside

Monday, SEPTEMBER 29, 2014

Find Me-Frozen Inside


There have been times when I've wanted to curl up and stay in the safety of a cocoon, much like a butterfly does. I've had days when I feel locked in a glass house with no way out and everyone watching. I want to fly free; I'm emotionally healing much slower than I expected. I'm trying hard to break out of the prison walls I've built around myself. I wish I had someone to talk to. I need to gain my grasp and be more authentic with people. I hide how tearfully hard it is for me not to be able to smile a big full smile; my frailties are being masked by a strong woman who has difficulty admitting her weaknesses.

I sometimes ache, trying so hard to hold back smiles or laughter for fear of what I look like to others. I caught myself wanting to laugh when I heard Ezra's huge belly laugh--he is so cute--but I caught my reflection in the mirror of our entryway and suddenly realized, "this is what other people see" This immediately took me down to a low I can't explain. I still feel so much Happiness in my heart & want to share it, especially with my grandchildren, but for some reason, I've let the adversary control my thoughts. The confusion contradicts what I feel inside, I don't understand it, so I do not expect anyone else to understand it. I'm trying my hardest to Live Happily. I love serving others; it warms my heart and lightens my load.

I love the Happiness Movement the United Nations agreed upon; the decision was made that the day will continue on March 20 of every year. I know and believe with all my heart that one person can make a difference, a rippling effect that can be wrapped around the hearts of people worldwide, regardless of race, culture, religious belief, or lifestyle. I am an ambassador of Happiness, but I still want to know if that contradicts how I feel on some days. I feel like I am on display; I see how people look at me and then quickly look away. I know because I, too, have done it. I've said on this blog that I don't believe people, in general, are vindictive or mean any harm; it's natural for a person to take a double look at something that is not what they are used to seeing. I just never thought I would be the one on display. I see them look, then look away and whisper to their friend, mother, or neighbor; they both look and quickly turn their back to me, usually because they know I have just seen what they did. The only thing that really holds me together is knowing He sees me, the REAL me--He knows I want to be me again; the sad part is because of what I've experienced, I know I will never be the same again. Although I didn't ask for this experience, I'm living it. I also realize that I have control over how I deal with the inner aching I continue to feel. I may not oversee my trials, but I have control over how I deal with them, and I choose to take it slow, understanding all that is expected of me, then proceed forward in faith and with a desire to continue to be the best I can be.

On the days when I work at UsAirways, the security guard always asks me, "how are you doing today, Monya?" and my answer is always the same "better than I was yesterday" I wrestle with what has been lost in my life, it's more than just dealing with cancer with and all the side effects. I carry a crushing weight on my shoulders when I cannot achieve my goals. I can't do this alone; my soul is tired and needs rest. I've pleaded for help so many times I seriously think I don't have any tears left to cry.
I'm giving my all, but sometimes I want to avoid hearing the answers. Saying I'm deaf is an understatement. I am so vulnerable right now; I know I need to be willing to put all my trust in the Lord's hands once more. I've been down this road before; I know this feeling. Taking a step forward is challenging, and it hurts to look backward. I want peace to speak louder than my fear. I have asked again, and again, and again "what am I supposed to learn" "What do you want me to do next?" When I'm finally ready to listen, I will go and be or do what He needs me to do.

I know this fear and pain that I am feeling needs to be turned over to the Lord, but for today, just for now, I'm frozen inside. I have no regrets; I've felt this pain before, and I will not bury it; I know I have to live it, and when I'm living in those shadows, He will find me, take me by the hand, and lead me to a brighter place.

LABELS: BLESSINGS, CANCER, FAITH, HEARING, HOPE, JOURNALING, LIVE HAPPY, LIVING, LOVE, MAYO CLINIC, PAIN, PEACE, SMILING, TRIALS 

Wednesday, September 10, 2014

Why are you happy?

 

WEDNESDAY, SEPTEMBER 10, 2014

Why are you happy?



I was recently asked, "why are you happy, and how do you remain happy?" The truth is, I must work on Happiness every day of my life. I did not intend to be diagnosed with late stages of breast cancer or the following side effects. I thought at the time it was a joke; I was still going to continue training for that Marathon I always wanted to run. I was happy; I had the life I always dreamed of, stay-at-home mom, room mother for all four of my children's classrooms, and I loved driving the girls to dance and Blake to baseball. Good friends and a wonderful family surrounded my life.

 I have always been a runner, kickboxer, cycler, core trainer, and weightlifter, this was my life, and I loved every second of it. The day I had to listen to a doctor explain what type of cancer I had, I did not respond; Eric was crying; it was such a blur. Why was he crying? This is not real; we will get a second opinion, and of course, I will continue to train because this is not real. Even now, when I look back at that day, how I responded amazes me: no tears or emotion. Blake was at the airport flying up to Utah to see his girlfriend Lecith, and Kaitlyn was living in Utah, going to school and loving life. She had found the man of her dreams, and I could not be happier with her choice. Eric called Blake and asked him to come home, but he wouldn't. He told Eric to just tell him what was up. When Eric told him, he was angry, thinking we knew for a while and just didn't tell him. I explained to him the doctor had just told me I had no idea. We did not hear from or see Blake for a week. He went to Utah and would not answer his phone. We then called Kaitlyn to tell her, and she reacted just like I did, with no emotion--however, Brian told me later that she was distraught. She thought like I did. This was just a little thing that would go away. Kayla, Jeremy, and Haleigh met us at the house, and I remember Eric standing in the kitchen sink. The kids and I were sitting at the table, and I just said, "I have cancer" Immediately, silence entered the room. Kayla started to cry, Eric was still crying, Jeremy was in a sullen mood, unsure how to react, but asked if I wanted a blessing. Haleigh, she was and is my baby girl. This announcement could not have come at a worse time for her. It was a week before her senior year of High School.

Since that day, I have had to learn to smile with my eyes and listen with my heart. I had no idea what would explode in our lives as the Villain took over. Suddenly, the "things" that were so important to me were insignificant. During the first three years, I never went one minute without thinking about the Villain; every appointment, bone scan, MRI, and test gave me anxiety. I still get anxious when I step off the elevator onto the third floor of the Mayo Clinic; I can smell the chemo, and the sickness is in the air.

Tonight, I just can't sleep. My mind is racing; I feel unprepared for this trial I am having now. I need some calmness in my life. I just want to fall asleep and be with Eric's mom and Dad, dream of being in a safe place, with no pain, no hurt, and in the arms of people who unconditionally love me. I must remind myself every day of the many blessings I have. I see my reflection in the mirror and want to cry. I don't expect anyone to understand. Now, I must learn to accept the person I see in the mirror and remember to smile with my eyes. I loved Elder Holland's talk about depression. I have read it repeatedly. Depression is REAL. If you have ever experienced it, you know what I am talking about. When Robin Williams took his life recently, much discussion was about his selfishness. I cannot completely understand his reasons. My heart was with him. How well he hid his depression and made us all laugh while he was struggling with his own demons.

A person cannot go through some of the things I have endured and be unchanged. To the people who feel discouraged, and misunderstood, have faith, hold onto the knowledge you have of Hope for a better day. I loved it when Elder Holland said, "Above all, never lose faith in your Father in Heaven, who loves you more than you can ever comprehend" It's incredible to me that the love He has for us never leaves. He will always love us. That love is unconditional. I am happy all the time. That simply would not be true, I struggle with it daily, but I know it is a choice, and it feels better than being depressed. You can wake up every day and decide to make the most of the life you have been given. It does not necessarily mean changing your world but how you look at it.

Friday, August 29, 2014

Botox...Seriously?


FRIDAY, AUGUST 29, 2014

Botox...Seriously?

Yesterday I was at work sitting at my desk, and a girl walked up to me and whispered, "where did you get your Botox done on your forehead" I whispered back with a shhh and finger over my crooked mouth. "Are you kidding me? She said I don't have Botox, "then why doesn't your eyebrow move?" "Umm, because I have a partial facial paralysis." she then said, "Oh, you were gone for a while and I just assumed when I saw you that you must have had some Botox, or plastic surgery done." Again, I'm laughing inside. Still, I replied as I took off my reading glasses "look at me, I mean really look at me, does it look like I had plastic surgery? If this is the result of plastic surgery, I got ripped off." 

Wednesday, I had an appointment with Dr. Barrs at Mayo Clinic. I was a little anxious to see him and to see what his reaction to me would be. I love him and was worried he would be upset with me for going to Cleveland Clinic. I couldn't of been more wrong; he came in with his big smile, arms out, reached for a hug, and said, "As I live and breath, who is this beautiful patient?" Pleased as I could be, I jumped up and hugged him back. I told him I felt like I was HOME at Mayo Clinic, not that there was really anything I didn't like about Cleveland Clinic, but there is a reason Mayo comes in #1 every year with ratings from patients and medical statistics. I told him Dr. Haberkamp was great to work with and that my leaving had nothing to do with him; it was the procedure the other Doctor proposed at Mayo. I was just jabbering. He shook his head and said, "I was never upset or took it personally." even if that was not really how he felt, he was classy enough to make me believe him. He sat on the chair before me and wanted to hear the Cleveland Clinic experience. I also told him Dr. Haberkamp said he wanted us to tell Dr. Barrs his work on my ear was impeccable.
He examined my ear and said everything looked good, but we will need MRIs a couple of times a year on the head. Kathleen came in to visit with me; she is beautiful inside and out, and was so concerned about me, she embraced me as she left the examining room and said "I love you"

  My eye is still the biggest concern now, he agrees but I'm doing all I've been asked to do. Cleveland Clinic is calling to schedule the next surgery, I told Erin (gastman's PA) I can't think about that right now. That chapter needs to end, ironically enough I think it's just the beginning of the end. This is so hard.

Today, Friday I had the privilege of seeing my oncologist Dr. Donald Northfelt. I think for most cancer patients this is a bitter/sweet appointment to have. I started to fret and worry last night, my mind has been so pre-occupied lately with all that has happened, I have not let my  brain think of today. No panic attacks getting off the 3rd floor elevator today, that's progress. Maryann came in to see me, greeted me with a huge hug, we both had tears. She is incredibly insightful, when I was in Cleveland she said a prayer with me over the phone. We visited awhile, it felt warm and loving to be with "my" people again--I know both Mayo Clinic campus's like the back of my hand, but today being back was a feeling of reunion, rather than burden. Anxiously waiting to see Dr. Northfelt, I am so grateful I listened to the spirit when I was led to him for my oncologist, I love him. He went over my blood work and said it looks good right now. For me, for right now, as in today, this is who I needed to see. Dr. Northfelt promised to be with me the entire journey and so far, he has, he gets it. Once he was done with his report and examination, he sat down looked at me, no words needed to be said, I could tell by looking in his eye's he could feel my burden was heavy. We talked a bit about the past few months, but didn't hover...we moved on to happier thoughts. I told him about working with Nerium and how positive the atmosphere is for me. I also explained to him about the Live Happy Movement trying to get more happiness in the world by spreading my own happy thoughts with others hoping they will also spread the word to BE HAPPY no matter what the circumstance. We had a great visit, I will never be able to articulate the feelings I have of HOPE just because he is who he is, not only a wonderful doctor but knowing he deals with people like me everyday, I always feel like I am his only patient, and that he loves me.

2 COMMENTS:

Anonymous said...

What a sweet, grateful post.

Thanks for this

Tuesday, August 19, 2014

Back To Work

 

TUESDAY, AUGUST 19, 2014

Back to Work

I decided to go back to work; my doctors in Cleveland would have wanted me to wait a bit longer, but I couldn't sit around. I look in the mirror and I am still not ready to accept what I see; I really thought I was. Last week I finished my work; it was a difficult transition, and my eye continued to be annoyed. Cleveland Clinic PA told me to massage the lower lid to strengthen the muscle; I have been doing that, but still, it waters constantly to the point of not being able to see out of my right eye. Mayo Clinic says I have chronic dry eye, which is weird since it always waters. They are trying to fit me in this week. Work was challenging; my foot was so swollen by the end of each day, I had a tough time getting my shoes on. I tried to spend the weekend elevating it; I don't have a vital education about how nerves all I know is it takes a year for things to truly heal. If this last surgery did not work, this is what is next. They will make an incision from my hairline, ear to ear, pull back my face, take the nerve from the left side, and attach it to the right side, then wait another year.

Being at work, I felt vulnerable as I walked into the building; I usually like to smile and greet people with a happy attitude. Alot of people did not recognize me with my short hair and odd-looking face. I even had someone ask if I gained all my weight while I was gone...Yes, I did...I was on two different steroids and ballooned up a bit. I am now off them and back to my regular eating habits to get back to my average weight. When others notice, then it must be a noticeable change.

I am always amazed at what my brain can retain, and what takes time to recall. My job at US Airways is in the International Reservations Department. There is a lot of information most people take for granted that they know how to do. I've realized, since being back, how amazing my brain is. Reactivating those brain cells and muscles, I have not used for a few months, is slowly coming back without having to look at my notes.

I am struggling to keep my spirits up and stay positive. One way I do this is to continue to read an enjoyable book every day for 30 minutes...this gives me HOPE in my purpose in life. It is so easy to wonder "why" when that happens; I have to get on my knees and say, "thank you for this trial,  I am trying so hard to understand; please give me guidance and strength to know what to do, now that it is done there is not much I can do to change it, but now it is time for reality and for me to live with it, I accept that, but please help me along the way, give those nudges of the spirit when I am bombarded with doubt." 

I marvel at my ignorance; I once thought I had all I could deal with as a youth, and that my Heavenly Father had given me quite a challenge to overcome, and when I finally did and was able to truly forgive and move forward, I just knew that was it for me ... If I could overcome that, I would be left alone for life... no more trials. He really does give us what He knows we can handle, but He is also trying to teach me something through all this. I had a dream that allowed me to see and was explicitly told that I have a purpose here on earth; it's just so hard to grasp what I've been asked to do and not say, "why? Why me? I try to believe that I am of infinite worth and that I should be saying "why not" Maybe because I know all my faults and know the things I need to work on, I am not a particular person, no different than anyone else, the world is filled with people who are struggling. A part of me wants to negotiate my way out of this one.

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