Year Two: The Ache That Lingers

Frenchie

Everyone told me it would get easier with time. But here I am — deep into the second year — and it hurts even more than ever.

The world expects healing to follow a schedule, as if grief has a deadline. But the truth is, I still cry every night. I stare at the pillow with your face — that big, beautiful smile — and I miss it just as much now as I did the day you left. My heart still feels shattered. I still reach for you in the quiet moments, and each time I wake and realize you’re truly gone, the pain comes flooding back all over again.

I’m learning that grief isn’t linear. It isn’t something to check off a to-do list. It’s not something you “get over.” It has reshaped me—woven into the fabric of my everyday life. I’m learning to carry it, but some days I still fail.

Grief is complicated because it’s invisible. From the outside, I look delicate — maybe even strong. But no one sees the weight I carry: the lump in my throat, the restless knots in my stomach, the exhaustion that comes from pretending I’m okay. Grief is quiet and heavy, a burden most people never see.

You were my anchor. My peace. The one who helped me breathe when the world felt too heavy. Without you, I feel like half of me is missing.

Still, I move forward. I carry your absence with me like a shadow — sometimes light, sometimes suffocating. Some days, the grief feels like a soft whisper. On other days, it rages like a storm, leaving me breathless. But always, underneath it all, it’s love. Pure and enduring love.

I am learning to coexist with the sorrow. I don’t feel whole — not yet — but I am still here. I’ve changed. I’ve grown in ways I never expected since you left.

Haleigh still will not talk or text me. My heart aches for her, but I’m learning that I have to keep moving forward without her. I miss her so much, and I know this would have hurt you, too. I may never see her or our grandchildren again. So much has changed, and I no longer have the energy to keep trying to force what isn’t flowing. I’m not getting younger, and I want to build healthy, joyful relationships with the children who do reach out, who show up, who love me back.

Kayla tells me I wasn’t supposed to reach out to Haleigh — that there’s no contact rule— but I never got that memo. I send texts at random moments: I love you, I miss you. I don’t know how else to hold her in my heart.

Despite all of the brokenness, I can feel Heavenly Father near. I feel you cheering me on in the quiet moments. And while I may not be alone, I am — undeniably — deeply, quietly lonely.

I’ve decided to serve in the Mesa Temple. I’m on the waiting list for a calling — just one day a week, but as much as I can. And I’ve decided I want to serve a mission someday. In two years, when I retire, I hope I’ll be healthy enough to go. You know this was always my dream. I wanted to serve when I was twenty-one, but life had other plans — beautiful, messy, unexpected plans. Then you promised me we would serve a mission together. You promised me.

I don’t know what our mission will be, Eric. But I see it two ways:

1. I get to serve in this life — healthy, devoted, and doing good — carrying you with me in every prayer.

or
2. I finish this life and serve with you on the other side.

In either case… I win.

I love you so much. I want to do everything right while you’re gone so that when I cross that veil, I can run straight into your arms.

XOXO
Monya

I Bought a House

Frenchie, have you been listening to me? I needed your opinion on moving, one of the things I miss the most about you is our sincere talks. I know you better than anyone on Earth, and I know you stood before your Heavenly Father with great pride. 

So I wanted to talk to you tonight; I need to decide about moving. I met the children at Reserve at Red Rock so they could see my interest in the home. Surprisingly, they all loved that I was considering moving to where you sold homes. Terry walked me through several specs. I thought I was set on one until I was told the house would be done in October. I am not emotionally ready to do that yet. Would you be if I was gone? You

would have stayed in this house, even if it's because you would never want to clean it out. Today, when I was at Red Rock, I told Terry I could not move that quickly, and he said he understood. He really has been so kind to check up on me. I saw the lot you saved for the lady whose husband passed away. He was a pastor, and they lived on a ranch, but she could not sell her house. I asked Terry about the lot and if I could build something new. He asked Jeff, and he approved it. Today, I wrote a check for $100,000, which was weird. I've always had to make decisions like this with you. I can't count how many times I asked Terry, "What would Eric do?" 

I bought a house, WHAT? I love that the neighbors all know you and love you. Terry and I went to Vito's house to visit him and his wife. He is something else. When I came into the house, he tried to kiss me on the lips. I knew it was just the Italian in him, and Joanna didn't seem to mind. It's who he is. Remember when we went to dinner with them? He was quite a hoot, and the stories he told were funny. I think about that night and can see you laughing so hard. You winked at me when he tried to kiss me that night. I was a little grossed out until you explained Vito to me. Vito said, "I loved Eric. Do you know what he always said when he saw me?" I said, "No, but I'm sure you are about ready to tell me." With a big smile, he said, "Eric always said, when I grow up, I want to be like Vito."

Mexico

I am so grateful to Brian and Blake; they have been helping me figure out finances. I'm going to have Ronny put me on a budget. We are fixing 604 and 605 like you and I planned, except I will not pull up the tile like you wanted. It's not necessary; it's Mexico!! We are spending the money to update them and hopefully be able to rent for a higher amount and bring in a new client who will care for those condos like we do. Flor will have to do more work; if we need to pay her more, we will; I think it might be good.

Haleigh and Scott are in California. They will be gone all summer long. Before they left, they took me to IKEA, I know what you are thinking ... "She hates IKEA." Well, you are right about that, but Scott and Haleigh were so helpful. We bought all new kitchen essentials for 604 & 605, new bedspreads, pillows etc. Brian and I picked out two sectionals, one for each condo. I asked Kaitlyn and Haleigh to pick out the color. This time I'm decorating them exactly the same. 

Brian took the furniture down last week, and Blake took three new tables for the patio at the condos. I'm worried about spending too much money, but I am listening to the kids. They have good taste. Haleigh and Scott have rentals and know how to update. Kayla has offered to do some marketing for the condos; I know we must be careful, but I think Kayla understands. She will not give our names or the condo numbers, just a condo on Sandy Beach. I'm very pleased with all the kids; they are the best thing we ever did together. I see so much of you in each one of them. I wish you could be here to see our great children. You and I can't take all the credit. We know we could have been better parents. I only remember the good stuff. Each one has their own personality and perspectives, and I think they are good humans. I love them all.

See You Soon,

I love you, Monya

Family is Everything

 We just arrived home from two days in Mexico; having a retreat like our condo to go to any time we want and just chill and get to know each other again is so nice. We are all evolving in our lives, so as we get older, things and thoughts change. Eric and I are in harmony with what we want today!! We have plans for our future, but tomorrow might come later. Life and every breath we take are but a moment in time, and that breath can be taken at any time or anywhere you are. We choose to move forward, remain with healthy friends who want to be with us and see the good in all we do. 

It is a process, but you can retrain your brain. It is physically possible for our brain waves to bring in conscious thinking. Stop living in a Subconscious world where most people are stuck. I know how to do that, except for one thing that takes me time- my children. They will always be on my mind. How can I make things better? What did I do so wrong that they never want to see me or allow me around their children? I've done all I can do, and if my two daughters think I'm disgusting, which is what they have both said to me. I will not change their minds, but I can change mine. It's an arduous process, but I will succeed. That does not mean I won't think of them fondly as I see pictures of them or their children, but they have boundaries, and I will support what they need and want for their families.

In the meantime, we will enjoy what we have and let go of what we cannot control. We have four beautiful grandchildren who know us well and want to be around us. I love that both their parents can forgive and move on with us. My first granddaughter, Blake, and Chloe's daughter, Weslie, teach me something new every time I see her. She is kind and gentle, and no matter what, she will always be part of my life, as will her younger brother Zeek, who loves me and tells me every chance he gets. With this family, I can be myself and not feel like I am walking on eggshells with every word I say. Chloe has become my daughter; I have spent more time talking with her than any of my children. It was easy to open up to her. She is my vault when I need to talk. I love and adore her.

Scott and Haleigh have a boy and a girl, Ellis and Sena. They are so sweet and have made boundaries for themselves. We are not allowed to hug them; they don't like that kind of affection, which is okay with Papa and Bonbon. Eric's family taught me how to show affection by hugging everyone they knew. So, I am a hugger, but I've learned from them that they will say "no" when we ask for hugs. Now that Haleigh has explained to us. Eric and I are learning that not everyone has to hug to show affection. They always say, "No, thank you, Bonbon." Then, they are off for their next adventure. I Love that they know what they are comfortable with and what they are not comfortable with. But I still need help opening up with Haleigh and would like to know if Scott likes us. He is so quiet when we are around. Eric and I are so proud of him and grateful he is part of our family. Haleigh and Scott have a beautiful family. 

ZEEK.... You silly goose

                                        Blake & Chloe Williams Family

                                          Wesley....Our little Princess

Sena, age 4 Beautiful Girl

Haleigh & Scott Bigelow Family

Ellis ... Oh so Cute

 

You're the MOM

     Eric brought me home from the hospital on the evening of Nov 19th. On Tuesday, the 29th of November, I drove him to the surgery center, just a mile from my house. I wasn't allowed to go back with him until he went into surgery like he always did with me. Before he returned, we hugged and said, "I love you; see you soon." 

    I went home, waiting for the surgery center to call and say all was fine, and I never heard from them. Eric called me and said the center decided to keep him one more night. They had been giving him fluids, but he could not go to the bathroom. I asked about his chest pain and if he still had acid reflux. He said yes, but they were giving him Prilosec. We talked until he fell asleep, and I said, "I love you too; see you soon."

    When he got home, his face was white; he said he was lightheaded, but he could not sit or lie down. We walked during the night, and I could see he was in pain. I ordered smoothies for both of us in the morning, and he said it made him feel better. I told him I had to get my blood taken and I'd be back in an hour. I asked him if he thought he would be okay if I left him for the tests. He told me to go and that he would be ok. I handed him his phone; his walker was next to his recliner, but he hadn't slept all night, so I asked him if he wanted half of something to help him sleep for a while. Looking back on this, I am not one to live with regrets, but this was the biggest regret of my life, I wish I'd never left him.

    I wasn't home in an hour; the doctor's receptionist told me I was late and that my appointment was at Thunderbird Mayo Clinic. This was not a close drive, I worried about leaving Eric, but went against my judgment and left for the appointment. My daughter Kayla went to check on Eric. Then she called me back to tell me she had called 911. I was already on my way home but could not drive fast enough, my heart was racing, and I was scared.

    I made it home with firetrucks, an ambulance, and one officer, and my heart was beating as they rushed him to the emergency room: Kayla drove me there. When they got oxygen on him, he said he felt much better. We were there for several hours, and his blood pressure was going too low, then too high. He was able to speak to us and was coherent. I called Clarence Schaub and Kyhl Powell and asked if they could bless Eric. He loves them, so he was happy when they arrived. Soon after that, Kayla came back, and the ER personnel said it would be better if I left and got some sleep because it would be a while for his room to be ready. Eric begged me to go home with someone else; I told him Kayla had brought me and would take me home but that I really didn't want to leave him like this, I didn't want this to be the last time I could talk to him. Eric assured me he was well cared for, I teared up saying, "I don't want this to be our last conversation." Eric told me to stop talking like that, he would be fine.

    At 2:36 am, I received a call saying they had intubated him, and he was in an induced medical coma, and now he was in the Heart Hospital next door, but there are strict visiting hours in the ICU. I could not go until 9:00 am and waiting for that long was challenging. The last thing I said before I came home from the ER was, I begged Eric to let me stay; he said, "No, you are still recovering, I love you, but I'm in good hands and feel better. I'll see you tomorrow," I said, "I love you."

        When I first looked at Eric, I cried. He looked so vulnerable, and I KNOW he was scared when he couldn't breathe. Someone from my family is always with him. 

    The cardiologist, Dr. Greene came into the waiting area and was trying to talk to me, but Kaitlyn kept asking questions and standing in front of me while trying to give me information about Eric. He finally asked who she was, she said she was his daughter and he told her he needed to talk to me as his wife and Power of Attorney. Dr. Greene told us that Eric's arteries were completely blocked and calcified. It was possible that Eric had been having many little heart attacks over the years, and obviously didn't know about it. The doctor tried to cut through it with three different scalpels but could not budge it. He told us we were keeping him on life support to see if he could wake on his own, but if he came out of the coma and could breathe on his own, he had a long road ahead of him. I tried so hard to keep my emotions to myself but felt like I was not being respected by my children, Kaitlyn was rolling her eyes at every question I had for the doctor. She has had a problem with me for a few years, and I lost control of my emotions. I asked why she rolled her eyes at me, and her answer was "I roll my eyes at everyone." I continued in a harsh manner to ask her why she didn't like me, and why she was so mean to me. It started a horrible loud argument. The doctor could not tell us my husband who I have been with for over 40 years would make it through the night. It scared me so badly; Eric and I have always trusted each other but we have never discussed his investments. I knew about insurance and investments he and I had invested together, but I knew there were investments he made, and I did not want to lose anything Eric had worked on and loved so much, Eric is all about buying low and selling high.  My oldest daughter Kayla, said, "I can't believe you are worried about money when your husband could be dying. All you care about is Dad's money." ' I told her I know exactly how much money I will get from insurance Dad has always been good about keeping that up to date. From early in our marriage until now. I was talking about his investments and not knowing how to take care of any of that. How could she say something like that, my husband may be her Dad but she has no idea what goes through a woman's head when she thinks her husband is going to die. 

      It is now December, and I am hopeful Eric will make it through this and that even if we have to celebrate in the hospital I would, because this is his favorite time of year. When I'd get home at night there were always boxes from Amazon to bring in. I was trying to be aware of those to make sure each one of our grandchildren got a bean bag for themselves Dad and I thought that would be an easy gift and that the children would love it. When I opened them, I realized two were going to be too little for Recker and Ezra and I needed to return these and get bigger chairs for them. I had one day to do that so it would get to my house by Christmas. Then the next day I thought it would be a better day with Eric and with my children, but I was wrong. 

      I whispered to Eric how much I needed him and that I knew he was with his mom and dad, but not to get too comfortable up there because his family needed him, and that he and I still have a lot of life together. I played some songs from my phone quietly next to his ear. "I don't think I can do life without you, please come back to me."     

     In the waiting room was another story, I tried to be less combative but when Kaitlyn pulled her shirt over and said to me, "Look Mom, I don't have any garments on." She was trying to get a rise out of me. I said to her, "And...?" Why would I care if she had garments on? I knew she was trying to start something, so I said to her, "Why do you hate me so much?" Wrong question, I heard everything I have ever done wrong to her. Then I told her how she had hurt me too. This started an argument, Kayla told me, "But you're the mom." I wish I had a nickel every time I've heard that from her. Now I've heard it from all my girls. 

     Does that mean, my children are allowed to hurt my feelings, and be disrespectful and unkind just because I am their mother?  Kayla told me she is Autistic, and that one threw me for a loop as her mother I wondered why I didn't know about this when she was younger. I wanted to know what her doctor told her, and she blew up at me, she said, "So you think I'm lying? I don't have to show you my medical records." Because there is a lack of communication within our family I had no idea why she would be so angry, she was a mother of three boys, one with severe nonverbal Autism and one on the spectrum but he is high functioning. After that argument, I didn't hear from her for a year. When we finally did talk to me she tried to tell me how I was supposed to talk to her now. Okay, I agree with boundaries, but this was more than that, I was supposed to learn a whole new way of speaking to her after 34 years? Overnight, I was expected to speak to her as she requested. Dad and I talked about it and she had never said a word to him, he could speak to her like we always have. Why is he not held to a higher level? Because I'm the mom? She also said to me, "I was abused by someone, and it was in your home?" Very accusatory, I asked where? She said in our house in the Islands, when I asked who it was, she said "It is none of your business." Wow, I wonder if someday, God forbid, she finds out Recker was abused by a respite worker. When I watched him while she worked and she accused me of sexually abusing Recker, seriously? What is wrong with her? I would never touch one of my grandchildren or any child in that way EVER. It was then that I was no longer allowed to watch any of her children. That hurt me so badly, and Dad was angry too of all people in the world why in the hell would she think I would do such an evil thing to my grandchild? After that event, I wouldn't want to be alone with her children for fear she would turn me into CPS for something she 'thought' was real. 

     Back in the hospital waiting room, I decided after Blake started yelling at me that it was time for me to calm down and stay away from Kaitlyn, well actually all my children. Blake and my relationship has always been different than what I had with the girls of course they think he's always been my favorite. I said nothing to him. I know him, he can be as mad at me as he can and it's over, he tells me when I'm out of line, forgiveness is given on both our parts and it's over. My mom said that was exactly how I was growing up. These millennials have a new way of communicating and if it doesn't go their way, even if you are their mom, they are done with you. Kicked me out of their life like a piece of trash. 

     I spent some more time with Eric and then went home. I was crushed again just because I'm the mom. Why couldn't they say, "Mom that really hurt when you said ......" Then we could work on that? Why wait years and years to bring up things I don't even remember as a mother. I don't care what they think I was a good mother, and I am an excellent grandmother. I showed up at the hospital in the morning and all my kids were there, Kayla and Kaitlyn came back from visiting their dad and they said the nurses were doing something so no one could go back for an hour and a half. I watched as they ignored me but were perfectly had to order the right beanbags today. Kayla once again, thinking of herself, turned to me and said, "I can't believe your husband is dying and you are asking about Christmas. I can't talk to you. And I've told you how to speak to me." HUH? I just didn't want her children to be the only ones without a beanbag big enough for them. I guess because I'm the mom, It's not okay to ask questions about Christmas gifts that would have surely hurt their feelings if they got nothing, but it's okay when your dad is dying to be laughing at TIK TOK.

        I stood up to go see Eric and my girls blocked me saying, "Dad doesn't want you here, he said you are trying to kill him." I knew there was no way he said that, we may not be the perfect examples of parents, but Eric and I are in love and have been together for over 40 years. WTF was going on, I just knew Kayla and Kaitlyn had something to do with this, they would hurt me that much to get back at me ... just because I'm the mom. I was so embarrassed I ran to the EXIT to leave, and Haleigh followed me, she said, "Mom do you trust me?" My mind was all over the place. I had no idea what I said to her, but I do trust her. Haleigh is quieter in nature than any of the other children. Haleigh has been through the most with me. She helped take care of me when I was so sick during chemo and radiation, I will always be grateful to her, I ruined her senior year of HS.   

     The next day I came back, and the ICU guard told me I was not allowed in the hospital, that patients were at risk with me there, and especially my husband who thought I wanted to kill him. I said, "I am his POA, I would never hurt him EVER. Who put my name on this list?" She looked at me and said, "Kaitlyn, she is now his POA."   

     I was escorted out by security and asked not to come back. I was crying hysterically, and when I was walking to my car I looked up and saw my children watching me walk to my car.

     So now, I went home and waited for word about my husband but still would not be allowed in the hospital let alone ICU. I was hurt worse than I ever have been and what's worse I knew they didn't care. Blake came by the house that night ringing the doorbell banding on doors wanting to talk to me, but I couldn't, I was in shock still just staring around not knowing what to do next. I'm sorry Blake, I was in a whirlwind of emotions and did not know what to believe. 

      When Eric woke up, Blake called me, told me, and said he would be leaving for a rehab facility in a few days. I asked him if Dad had asked about me, and he said, "No, but you called me while I was in Eric's room and excused himself. When I came back in the room all he had to say was 'Was that mom?' I told him yes, and all he said was "Is she mad?" 

     He was awake and didn't want to know about me? It just didn't seem right, but my kids were in charge and taking over my marriage right before my eyes. I had no idea why he said what he said, I thought he was under life support. Now he's awake and it was obvious that I was not included in any choices about his care. After a couple of months, Haleigh called and wanted to know if Scott and Brian could come over and get his bed for where he was moving. I told her no if he wanted anything from the house, he needed to call me himself.

     And he did within five minutes. I told him unless he talked to me my divorce attorney had said nothing was to be removed from the house, which was no problem because that night someone tried to break in. The next day I went to Home Depot and took a quick course from one of the workers on what the best lock was and how to install them. 

    I told him I spoke with his financial planner that Eric always had me in mind when he made any investments and that it was better under these circumstances for me to take care of as much as I could now. I cried myself to sleep every night, and not once slept in the bed he and I shared.                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                             

    When I sat at home alone, I thought about how we didn't have a will written since my first daughter was born; I wasn't worried about money. He and I have discussed the insurance each of us would get if the other passed. But one thing we have never really talked about was his investments. I knew he had many, all with my name on them. Eric loves selling; his passion is getting a deal on the property, then turning around and making twice as much. I tried to explain to my kids I know the insurance policy on myself, my kids, and grandchildren-they will be taken care of. But they seemed angry at me for talking about dad's money; I told them this isn't about money. I have yet to learn about his investments. I've just always trusted him as a businessman. He never had to ask me about investments because I knew he wouldn't buy anything unless he knew we'd make money on it.

XOXO Monya BonBon

Haleigh-Washed the Blood Out of My Hair

 

MONDAY, JANUARY 6, 2014

Haleigh-Washing the Blood Out of My Hair

On my way home from the Mayo Clinic, I was thinking about the day after I came home from the Hospital. I called Haleigh and asked her if she would mind coming over to my house and washing my hair for me; she said, "I'd love to do that for you, mom," as she washed the blood out of my hair in the kitchen sink, I could smell the blood. Haleigh was careful not to get water in my ear; it was a challenging task. I reached up to help move my hair over and out of the way of the water, and a chunk of hair fell into my fingers. Tears immediately filled my eyes; I wrapped my hair in a towel, went upstairs, and tried combing through it, but clumps were falling. Two days later, still a huge chunk, I asked about it, and I was told that the amount of anesthesia I was given during such a long surgery sometimes affects patients by their hair falling out.

 I have thought about Haleigh washing my hair that day so many times --it was such a small act of service, and knowing my daughter, she has not thought about it since. Sometimes those tiny acts of kindness are the ones that mean the most to me and to others; those are times when I think of the Savior teaching us.

Matthew 22:36-39 A man asked Jesus, "Which is the great commandment in the law?" Jesus replied:  Thou shalt love the Lord thy God with all thy heart, and with all thy soul, and with all thy mind. And the second is like unto it, Thou Shalt love they neighbor as thyself" Charity and service are the pure love of Christ; when we can serve others even in little ways, it shows our desire to be more like HIM. Sometimes those acts of service are complex and can stretch us to places we may not feel comfortable. But I believe in all of us there is Charity, a gift from God. He has given it to us and expects us to act upon it. When we can do it with a willing heart, it shows we are trying to be more like Him and have true Christlike Attributes.

I don't think it was an easy task for Haleigh to come to my home and clean blood out of her mother's hair, but I was grateful she did it. Showing these Christlike Attributes helps us to gain the potential to become more like HIM. When we do it with a pure heart, avoiding negative feelings, judgment, and criticism, it is easier to understand another person's point of view, strengthening our faith and developing a life of service and charity.

Could Have Been Worse

 

SUNDAY, JANUARY 05, 2014

Could Have Been Worse

Today is Friday, January 03

Yesterday, I had an appointment with my surgeon. I stayed off pain medicine except Advil to drive myself to the Mayo Clinic.

black all gone--with my hair down, it covers the bald spot
you cannot even tell except that my hair is a bit thinner
I feel more comfortable having my ears covered so
I usually wear a beanie.

I checked in on time at 2:50 pm for a 3:00 pm appointment; I did not wait long at all I was in the doctor's office by 3:00 and seeing the resident by 3:05. This was a resident I had never seen before; in fact, none of the residents in this department made a second appearance. She asked her usual questions, how are you feeling, how is your pain, anything new we need to know about? Before I answered her questions, I asked her if I would be able to see Dr. Barrs; she said he would be in shortly. She then proceeded to poke around in my ear, then said, "I'll be right back; I need to get Dr. Barr's" soon; he came in, took a quick look, and asked the resident to leave and start on the next patient before she left the room, he wanted to show her something in my ear, he told her about the black area in my ear was dead skin. In his 31 years of practicing, he has never seen skin die like that before surgery, he excused her, and I didn't see her again.

He took a scalpel and cut off all the dead black skin, except for a small area he could not get to without hurting me, so I think he will deaden the area around it next time and take it out. Cutting out that dead skin did not hurt at all; it was weird. Then he laid me back, told me to hold tight and that things would get dizzy. Immediately when he began to vacuum my inner ear, I couldn't keep my eyes open; I was so dizzy. He asked me to keep my eyes closed, and it would help. It did help, but when he was done, and I opened my eyes, it was tough to keep them open, and it took several minutes to regain some normal visual. The vacuuming was extremely painful, especially since all I had was Advil. Dr. Barr gave me a new regimen for cleaning my ear to see if it would help the healing move along faster--swish out the big hole with vinegar and water--OUCH--was my 1st thought; he then looked at me and said, "this will sting a little, make sure the water is at room temperature" also that I need to keep germs at a minimum, stay out of public places as much as possible or wear a mask--I seriously cannot stand wearing that mask.

Once he was done, I asked him to look in my left ear because I had difficulty hearing. He seemed surprised but did the usual exam of the ear and showed me on the movie screen there is fluid behind the eardrum. I asked him how to fix it because I worried about losing my hearing. He said he will see me on a more regular basis now; if the liquid does not go away on its own, he will first put tubes in that ear to try to drain it; if that does not work, then, well, I guess it's time for me to start learning sign language.

First, he took the cap off the implant, so it could heal. We will not be able to connect to the BAHA until March or April, depending on the healing. Now I have a screw visually going through the bone in the back of my head behind my right ear. This BAHA is healing very well and, as expected--good news.

Then he helped me out of the chair and assisted me to a place to sit down so we could talk. What he told me is this--he cannot get the ear cleaned out for a long enough period without it filling up with blood, so he cannot tell me if the healing is happening or not--he said it is unusual--I asked him if the grafting took--he said, "again I cannot get a clear view of the grafting or the area I need to see if it is healing correctly, normally I would not be seeing you again until March or April to finish up with your implant, but I feel it necessary for me to see you every week until I can see an improvement"  I asked him if he can give me a little more, some HOPE that this is just taking longer to heal than usual. He then looked at me and said, "I have to be honest with you. I have never seen anything like this before, so I don't feel comfortable giving a prognosis quite yet" I waited for about an hour until the dizziness went away and left his office.

Four Years and Counting

 

SATURDAY, AUGUST 3, 2013

Four years and Counting

It's been 4 years now, this week, since I sat in the quiet, dark doctor's office with Eric by my side and heard those terrible words, "YOU HAVE BREAST CANCER"  WOW, time seems to creep up on me. I feel like sometimes it was yesterday we listened to those words, and then sometimes, when I think about what has transpired in our lives since that date, it seems so long ago.   I have to dedicate this blog to my family, who has stood by my side through this entire journey, and I realize this has been their journey too. Blake left for his mission for 2 years, came home, and got married. Kaitlyn and Brian married, lived in Utah, and moved back to Arizona. Kayla and Jeremy have had 2 boys born into their family, and Haleigh married Scott Bigelow. Look at all these blessings the Lord has allowed me to witness, I am so happy I have lived to see all of this, and I have faith I will live a long life, long enough to see all my grandchildren born, and I'm pretty sure we will have lots and lots of grandchildren---right? Kayla and Jeremy? Blake and Chloe? Kaitlyn and Brian? Haleigh and Scott?

 I don't think about cancer as much as I used to. Never in my wildest dreams would I have imagined my body would or could go through what it has been through. I was prideful and always thought, "I am healthy, I eat right, I exercise,  I will never have health issues. After all, I went from 1st grade through high school with perfect attendance in school and seminary. The 1st time I ever threw up in my life was when I was giving birth to my 1st baby during the transitional part of childbirth. My sisters both have health issues, Eric will die long before I do, and I need to keep myself in good  condition so I can be around to take care of my kids when he does."

It makes me want to throw up--what the heck was I thinking? Yes, it's good to keep yourself healthy and exercise when you can, but I was seriously way off the map on this one. My family has terrible health issues, autoimmune diseases that I can't even spell, cancer up the kazoo--every kind you can think of, arthritis, thyroid issues, and so on. Eric's family is somewhat different. His mother died of breast cancer, but as far as we know, she is the only one on her side, and Eric's dad and siblings had heart problems, but all lived well into their 80s.

I'm aware of my body now more than I ever have been in my life. I feel when something is wrong--crossing my fingers on that one-- The only thing I'm unsure of is what part of my aches and pains are from getting older and what is from family genes. Running a marathon and crossing the finish line does not replay in my mind over and over anymore. When I see other people doing it, especially people I know and love,  it makes me smile instead of frown :}  For me, life is more beautiful than it ever has been. There is so much to look forward to, so much to still learn, places to go, and people to meet. Life is just beginning--many, many more rainbows to chase.....

Hangin' With T Swift

 

WEDNESDAY, MAY 29, 2013

Hangin with T Swift

For Christmas, I bought all the girls and me tickets to see Taylor Swift in concert. Tonight, was the night I had so much fun with my girls.
I like Taylor Swift; I know she gets a lot of publicity about all the songs she writes about her breakup with the boys she dates. But tonight, I heard it from a unique perspective, and I have to say I agree with all she said.  She writes about what was happening in her life at the time and how she felt now, these special times, or tough times will eventually help her to become the person she wants to be in life.... in other words, she learns from each experience and her songs are like writing a journal of her life, not much different than all of us who journal or blog about our lives.

The girls and I had great seats and it was so fun to be together with all of them, not sure what the guys did tonight, but our girl's night out was fantastic, and I wouldn't trade these memories for anything in the world, love my girls and really enjoyed the concert.

Negotiations with the Lord

MONDAY, DECEMBER 31, 2012

Negotiations With the Lord

When I was fourteen years old, I prayed to Heavenly Father, asking him to please get me out of the toxic environment I was living in, and I would promise to follow him and serve.

I also pleaded with the Lord when I was diagnosed with cancer to let me live long enough to see my son come home from his mission. HE DID.

Once Blake got home, I asked again to let me live long enough to see Haleigh find the love of her life and get married in the Temple. She's engaged to be married in March.

When Eric's mother was alive and first diagnosed with breast cancer, she asked her husband Ray to give her a blessing. She told him that all she wanted was to live long enough to see her three boys go on missions. She went into remission for approximately 14 years. When Kurt, her youngest boy, came home from his mission, her cancer returned, and within a few months, she passed away.

It's been 3 years since I was diagnosed with breast cancer and 3 years since my first negotiations started. I have a feeling negotiations are going to end. I promised my family I would make some decisions about moving forward with health issues after the Holidays, and the "Holidays" are coming and going too soon. I'm not ready. However, I did put it on my calendar to make an appointment with my pain doctor at Mayo Clinic --which means it's on my calendar to call them, and I will.

I'm making some progress as we wind down this year and start 2013. I have an appointment at the Mayo Clinic on Friday, January 04, with my new endocrinologist Dr. Roust. I saw Dr. Magitbay (my gyno oncologist) a couple of weeks ago, and he said things look good. I know it's baby steps towards some answers, but I'm making them. I also have some tests on the calendar, and my family will be happy.

This time of year brings on a lot of emotions for me and has for years. It used to be because I was not with my mom and sharing the holidays with her, knowing she would be alone, and she chose not to soften her heart. Now, I appreciate the Holidays, and I love the spirit it brings into my heart. 3 years ago, my friends and family put up all my Christmas decorations while I threw up and felt the pain of chemo raging through my body. I don't think I had given enough attention or appreciation for what Eric and the rest of my family were going through then.

 I often talk to the caregivers where I volunteer. One common thread that I have noticed is that they feel helpless, constantly feeling angry but not exactly knowing who to be mad with or why they are angry. Recently I received an email from one of our patient's caregivers. She wanted to see if it was "normal" to feel her anger after losing her friend. She wanted to know what she could have done to better serve her friend. When you are struck with a cancer diagnosis, there is no NORMAL to life. I have learned from volunteering that people going through this journey often differ entirely from their caregivers. I'm so grateful I can volunteer. Many people have said to me, "why would you want to be around that environment, after all you've been through?" to those people, I always smile and say, "why wouldn't I?" I'm learning more about myself and my sweet husband (the caregiver) from volunteering than I would have ever learned. I am so thankful for Eric, he was the best caregiver I could have ever had during my treatments, and he continues to be strong and the best cheerleader for me as I visit Mayo Clinic.

So as I ask the question, "are we allowed to negotiate with the Lord?" my conclusion is and always has been that we are not in control of our lives, we can make promises, and I believe the Lord will keep his promises to us. Still, life happens, and all around us are people who need our attention and need our love, we may not understand why some trials come into our lives, I sure don't, but I do believe, at least for me, I have learned so much about myself these past few years, I don't want to go back there. However, the experience has softened my heart and helped me be more compassionate, and if you know me well, you know this is a great accomplishment for me.  

2013--bring it on--even with that number 13, I detest--

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Celebrating our Freedom, God Bless the USA

 

SATURDAY, JULY 9, 2011

✭Celebrating our Freedom, God Bless the USA ✮

My cute Hales and I

✭Kayla and I✭

✭Me and Kaitlyn✭

✭Recker, Jeremy, and Kayla Roussel✭

✭Eric getting a little crazy in the streets of Mexico✭

✭Chasen and Eric Dancing✭

✭Chasen, Michael, Shelby madison Halcomb✭

✭Sand on my towel-thanks Reck✭

✭Recker loves Mango✭

✭Me and Hales✭

✭Recker loves the Ocean and Laffy Taffy✭

✭Recker fell asleep in the Pool with Eric✭

✭Brian and Kaitlyn✭

✭Greg and Lindsey Smart✭

For the past few years, we have celebrated the 4th of July in Mexico ✭ It Probably seems kind of strange to be celebrating an American holiday in another country. Still, we absolutely love it, and it's always a huge celebration ✭ The Halcombs are our good friends. They also like to celebrate in Mexico, so we always have an extensive bar b que with them, play volleyball, soccer, and the home run derby. ✭ By the way, Teresa and I tied for 1st place this year ✭ those youngsters have nothing on us old women. This year we had 13 people in our condo--Kayla, Jeremy, Recker, Skyler, Jessica, Kaitlyn, Brian, Lindsey, Greg, Haleigh, Emily, ✭ Eric, and I. ✭