Hopes and dreams with Dr. Sal Lettieri

 

SATURDAY, AUGUST 1, 2015

Hopes and Dreams with Dr. Sal Lettieri

This time 6 years ago I waited anxiously for a negative diagnosis of cancer.  Not receiving the news I was expecting, looking back on this journey I've been on I realize I am being prepared. For what? That I can't answer, I'm not sure I want to know.  I would be lying if I said I have not had days when I want to crawl up in my bed, close my eyes, and not wake up.  I have felt unmeasurable pain, physical, mental, and spiritual.  I think we all want to believe we are "strong" If I had a dime for every time someone has told me how "strong" I am in the past 6 years, I'd be a rich woman. I'm grateful to those people.  So many times I have prayed for a miracle and felt abandoned. Now that I've cried enough tears to fill a swimming pool I trust in Him.  So many of us have a hard time recognizing the blessings that come in disguise of a trial.

The funny thing about that is, I am a rich woman. Not in a monetary way, but I am richer in the strength of who I am. I've been forced to live my life with loneliness, hardships, and pain. What if I had not experienced these things?  Where would I be now? Who would I be?  He has bigger and better plans for me. I am in the midst of fulfilling commitments and I know He will keep His promises to me. I will serve others, and be happy with whatever circumstances come my way.

I have had to learn to challenge my thinking and to lean on a positive environment of people.  I'm trying to learn how to balance my life.  Work, family, Nerium, Mayo Clinic, friends, personal development, and daily intentional goals have helped me to keep focused on what is most important.  I've had to be brave in circumstances where others don't understand or actually don't have the capacity to understand what this past year has done for me. Just when I thought I could never look myself in the mirror again, I became brave I let it define and refine me.  I learned that my face is not who I am.  I can't say I have fully embraced the idea of a partially paralyzed face.

A year ago I read a book that changed my life and added value to who I am, I will forever be grateful for having the knowledge before I read it, that I am a beloved woman of God. If not for having that testimony I probably would not have been able to make effective choices,. I've learned your thoughts either serve your growth or serve your decline. It's been proven we make an average of 90,000 thoughts every day. I've always been a journal writer, and a reader and I love good uplifting Christian music so when I read The Slight Edge by Jeff Olson, I was like a sponge. I can attest to the power of words but as a child words were usually to my detriment. The Slight Edge convinced and reconfirmed to me I have been led and whispered to by the spirit all these years, I'm exactly where I am supposed to be in my life.

Humility is a word I probably would have never used to describe myself 6 years ago. I'm progressing by studying everything I can get my hands on. While studying I often think of all the people who have touched my life. Who I think are a true example of humility. Not one of these people knows they are humble, isn't that interesting? It is who they are, an attribute they have mastered without knowing they have. Some of these people have had devastating events happen in their lives and learned to control their thoughts and actions to mirror match a Christlike attitude. Others seem to not have had any apparent significant trials in their lives. They surround themselves or have been surrounded by proactive people who have built them up, and showed them compassion and unconditional love. The attribute of Humility is such a blessing, and not easy to accomplish.

During my reading of the Slight Edge and studying scriptures, I am finally able to say I believe in the power of the brain and how our thoughts, positive or negative can affect everything. I made the choice to look at myself in the mirror every day and say "You will smile someday" It's been over a year, and I've had 3 doctors tell me I will never smile again, I will never have facial movement on the right side of my face. I'm glad to report not all doctors are in charge of the outcome of a positive mental attitude. Dr. Lettieri told me I would smile again. He has encouraged me to continue to work that muscle.  Every morning for a year I tell myself over and over again "I will smile again" and then I tell my brain to tell my mouth to move. Dr. Lettieri has never given up on me, he has never said "You Can't or you Won't" It sometimes requires a surgical procedure but I am slowly but surely starting to tell my brain to simultaneously smile when I tell it to. It's working, I am reaping the rewards of my daily affirmations. It's a slight smile, but what's more important is realizing, just like reading from a good book every day, kneeling to pray every day, having faith all things I've done all my life are things I have mastered by doing them receptively. Those things are a part of who I am, If I stopped doing those things it would be like not brushing my teeth every day, eventually they would rot. It really has been such a slight change, but adding it to my daily routine has strengthened not only my brain and facial muscle but also led me to believe an arrow could be shot at me and I could repel it.

I am endeared to Dr. Lettieri, and to Heather Lucas. She has seen me through so much.  I miss Dr. Kreymerman and wish he was here to see my progress. Dr. Lettieri has now been renamed as my "smile doctor."

He said I would, I said I could and I am making progress. I am beginning to dream again, to have hope for my future. Prayer is the greatest miracle in my life when burdens have weighed me down, prayer from so many people has helped me to believe in myself again.  Putting my faith in Him I believe I have even greater miracles to come. He could take away all of this but His plan is perfect in every way. These trials are refining me into the woman I've always dreamed of being.

Dr. Sal Lettieri Eye Surgery

 

WEDNESDAY, JUNE 24, 2015

Dr. Sal Lettieri's Eye Surgery

Tomorrow morning, I will enter Mayo Clinic Hospital for my 26th surgery. I'm having a lot of anxiety about this upcoming operation. I forced it so far into the back of my head, knowing we were going on a family vacation; suddenly, it hit me on the plane ride home. I'm not sure if it's because I realize what recovery will be like or if I am just so done with all this silly nonsense--it's like Groundhog Day, repeatedly.

I cannot wear my cochlear device. It is an excruciatingly painful ringing in my head and gives me terrible migraines and dizziness. However, I've lost most of my hearing in the left ear (the good one). I can't hear my alarm go off in the morning (usually, I can listen to that thing rings throughout my home's walls). I can't hear music, people talking, everyday things I have taken for granted. Although it is annoying, I will have to wait until after this surgery tomorrow with Dr. Lettieri. Hopefully, he will be taking the gold weight out of my eyelid placed in at the Cleveland Clinic (wrong size) and being upgraded to Platinum--I like to consider it an upgrade--GOLD to PLATINUM--, and I think I will save the Gold Weight--let's just see what Dr. Lettieri thinks about that......I paid for it, so why not take it home? That's the easy part; the more in-depth portion of the eye surgery is to fix the chronic dry eye--I didn't want to know the details about how that is done; Dr. Lettieri likes me to be informed of procedures--I frankly don't care or understand all that doctor jargon, so I told him "I trust you, just do it" I love and do trust him, I am in good hands tomorrow. Heather will be scrubbing in, too.... bonus for me; I love that girl.

Time to get to bed now. I have 5 hours before it's time to check in.

Seeds of Hope

 

SATURDAY, MAY 30, 2015

Seeds of Hope

Those who read my blog know I talk a lot about having Hope in my life. When I have a  seed of Hope, I know it gives me good things to look forward to in my life. Hope always gives birth to the overwhelming trials of life. It always believe in the best, even in the face of my worst circumstances. For believers in Christ, Hope is much more than a wish, yearning for a positive outlook; it is based on the promises of God. I'm grateful for the Hope Doctor Lettieri has given me for a positive outlook on my nerve surgery.

I can have Hope in life no matter what surrounds me because I believe in a Heavenly Father who cares, knows me by name (Isaiah 45:3), understands the desires of my heart (1 Chronicles 28:9), and knew me before I was formed in my mother's womb (Jeremiah 1:5).

Recently, I watched an interview with the miracle Flight #1549 passengers. Instead of ending in a disastrous crash, it gracefully landed in the Hudson River in New York City. Knowing this was a US Airways flight, I had some exposure to the story and was very proud of the captain and how he landed. The outcome was nothing short of a miracle. In fact, it was being referred to as "the miracle on the Hudson" because all 152 passengers and all the crew survived.

I thought about the passengers and what must have been racing through their minds in those final minutes before the impact. During the cries and prayers, I'm confident in saying there was one thing they all desperately held on to ......Hope.

Some passengers hoped to kiss their spouse again, others to hug their son or daughter, and some to make things right with a friend or family member. As the plane was about to hit the water, they knew their lives were at stake. Many were praying, and all were hoping for a miracle. Then the impact came, and a fantastic scene unfolded with passengers streaming onto the aircraft's wings. Eric and I watched the news replaying the scene repeatedly and watched the fantastic rescue. 

While I watched this documentary, I couldn't help but think of the many people who feel their life is like that plane. Sometimes I feel like I'm going down, leaving me only to hope that things might be different someday. When I have those feelings, it's difficult to shake them off; sometimes, it takes days or weeks. Then I remember the promises, the covenants made, and I have Hope again.

I know people who are facing setbacks with their jobs or relationships. I know people struggling financially or who are feeling the pressures of life. It's sometimes overwhelming.   Knowing Heavenly Father is for me, not against me, gives Hope for a brighter future. His love has no boundaries. 

I must constantly ask myself: Am I solid like a rock, or am I allowing myself to sink in the sand?

I recently let the enemy, Satan, own my thoughts; I've even allowed others to dictate my divine destiny by getting my head. I need to always keep Hope alive and never ever give up. I know God always, no matter what, has a solution for me. I know this because he knows me; my destiny was chosen before I came to earth. He had rescued me when I was in depths of despair.

So far, He has not let me down; when I trust Him, I am never disappointed.

Something Amazing

MONDAY, OCTOBER 13, 2014

Something Amazing

THIS WEEK, I RECEIVED EMAILS ASKING ME TO EXPLAIN MORE ABOUT PAST POSTS. WILL EXPLAIN NOW.

I HAVE BEEN DEAF IN MY RIGHT EAR FOR 48 YEARS DUE TO A BLOW TO THE HEAD AT AGE THREE; FROM MY BIRTHFATHER (COLBY); IT HAPPENS TO BE THE SAME EAR I'VE HAD MULTIPLE SURGERIES ON THIS YEAR. 

MY LEFT EAR IS MY 'GOOD' EAR. EVEN THOUGH THE BAHA IMPLANT IS ON THE RIGHT SIDE, IT TRANSMITS SOUNDS WAVES TO THE GOOD EAR ON THE LEFT TO IMPROVE MY HEARING. MY RIGHT EAR IS NOW COMPLETELY EMPTY, WITH NO INNER CANAL, NO EARDRUM, NO NOTHING; THE DOCTOR TOOK SKIN FROM MY HEAD AND MADE A NEW-LOOKING EAR FOR ME.

Today, something unique happened to me. I had appointments at Mayo Clinic, and I met with Kelly Conroy in the ENT department to have my Baha hearing device finally connected to the implant. I was not prepared for what would happen; I usually go to Mayo Clinic without thinking much about why I'm there or who I am supposed to see; I just don't let my mind think about it unless I'm going to the third floor then I need to prepare myself.

I have met with Kelly before for hearing tests and to be fitted for my Baha, but it's been a year since my implant was placed, and so much has happened since then. The Baha has not been on my mind. Today, I was blessed with a Tender Mercy from Heavenly Father, which I needed. I now have a new person to love at Mayo Clinic, I will never forget today, and I am so grateful Kelly Conroy was the one I shared this moment with; she was so compassionate and loving.

Kelly placed the device on my implant and then adjusted her computer to customize the hearing device to my needs. What happened next was amazing; I wish I had it on video, or Eric could have shared it. I could hear everything clearly and crisply when Kelly activated the device. I smiled, and we sat and talked for a while so she could make sure everything was working well. We both cried as I explained some of my emotions this year. This was not even the impressive part. Once I got to my car, I could not believe the sounds.

 
I opened the door to get in the front seat, and when I started the car, my music was so loud I quickly turned it down, smiled, and backed the car up--and the sound of putting the car in reverse was something I had never heard. 

As I drove down the beeline highway, I noticed a man walking; I pulled over and asked him if he needed help. He assured me he had AAA on their way and thanked me. I wondered, "why is he talking so loud?" I was overcome with emotion; I had to pull the car over a few miles away, get out and walk through the wildflowers; never had I seen anything more beautiful. I looked at the sky, brilliant blue with fluffy white clouds, and cried. I heard a bird chirp; it was beautiful. I thought I knew what that sounded like all these years, but today it was more apparent than I had ever felt or heard it. 

I could feel His love for me. He loves me, He really, really loves me, and not only me, but He also loves my biological Father, Colby Belshe. I could feel his presence; this was more than an emotionally draining day for me, but at that very moment, standing with my arms high, twirling in the Arizona desert, I could feel that finally, Colby was happy; his daughter could hear. 

Colby never could forgive himself for being the fault of my deafness, and I forgave him. I don't remember being angry with him; I only knew partial hearing. I told Colby many times that I didn't blame him, was OK, and didn't blame him, but even to his death, he took that guilt. Today that is over for him; he watched me, I felt him, and I know he can now move on. Thank you, Heavenly Father, for such a beautiful gift you have given me.
I picked myself up, got back in my car, called Eric, and could not believe how loud he was; I smiled, tears running down my cheeks.

When I got home, this is when the real magic happened. I opened the door, and I heard the doorknob turn. I smiled. When the door shut behind me, I screamed. It was so loud, it scared me. I did the same thing when my phone rang, I had "Happy" as my ringtone, and I about jumped out of my skin, but I smiled. Walking across my wood floors, I heard every step. In the kitchen, I opened the microwave and shut it several times. I did the same thing with the refrigerator, and I smiled.

When my hand touched the staircase to walk up, I heard my hand even softly dragging, and I smiled. I sat on my bedroom floor weeping, alone, just as it should be. I'm sure it was not too pretty. I could even hear the carpet as I ran my hand across it; all I could say was thank you so much for this unexpected miracle. I pulled the string on the dental floss tonight, and the sound was nothing I'd ever heard before; I did it repeatedly until the container was all gone. Turning the pages of my scriptures was terrific; I listened to every crinkle and smiled. I sat on my bed in awe of what my Heavenly Father had blessed me with at such a critical time. I wanted to shout at the top of my lungs, HE LOVES ME. I don't think I have smiled like I did today for so long, and even though it was a half smile, I didn't care; I couldn't help it. Nothing, and I mean nothing, is as beautiful as being able to hear everything; all the creations He has created for us to see, hear, feel, and smell we take for granted.
I can't wait to hear more things. I immediately turned my primary music on, my favorite song has always been My Heavenly Father Loves Me...I cry every time I hear this song.

My Heavenly Father Loves Me:

Whenever I hear the song of a bird,
or look at the blue blue sky,
whenever I feel the rain on my face
or the wind as it rushes by.
Whenever I touch a velvet rose
or walk by a lilac tree,
I'm glad that I live in this beautiful world,
Heavenly Father created it for me.
He gave me my eyes that I might see
the color of butterfly wings,
he gave me my ears so that I might
hear the magical sound of things
He gave me my life, my mind
my heart, I thank Him reverently
for all his creations of which I'm
apart, yes, I know Heavenly Father
Loves me.

Today these words mean more to me than ever before. I can't help but think that Heavenly Father has been waiting for this day, preparing me, and refining me, preparing Colby, too, as he has suffered with this guilt for so long. I am happy for him too. I cannot stop crying. I am so blessed the tears are flowing like a river with no end in sight. I just want to open and close things. I want to hear my grandkids laugh, oh I can't wait for that; I thought I loved those belly laughs before, but I have a feeling as I get used to this new blessing, I am going to continue to have tears, learning so much of what we take for granted. So, if you see me tear up, I'm OK. I'm just hearing something new and enjoying it for the first time. I don't know if I can say thank you enough to Him who gave me this gift today, and I know He is smiling down on me too. I've been so lost these last few months, trying so hard to understand what I am supposed to do? What am I supposed to be learning? I will continue to ask, but not today. I am grateful this is a feeling I will never ever forget.

LABELS: HEARING, HOPE, KELLY CONROY, LOVE, MAYO CLINIC, PEACE 

Trust in God

 

SUNDAY, OCTOBER 12, 2014

Trust in God

Another night of insomnia; I cannot stop thinking about The Wentworth Family tonight. Our girls danced together for years; Darbie and Sierra have always had a special place in my heart, especially offering their personal prayers for me when needed. As I knelt to pray tonight, I asked God to wrap his arms in and around their hearts and comfort them with His love. I have perfect knowledge that their son Buddy is being watched over and taken care of, he is in a peaceful place that is nothing like earth, and he will be with his family again.

I recently received this bookmark from a dear friend, who I admire and love for her strength and love of the gospel of Jesus Christ. She, too, lost her son; it just never seems fair that a child should go to Heaven before their parents. Living in this world, we face so many challenges, and what makes it all worth it is knowing the Savior died for us; we have knowledge of the Atonement. We hear, "The Lord never gives us trials we cannot endure"  I have had some bumps along the way, especially in the last few years, but I am grateful the Lord knows I could not handle losing a child or grandchild. I'd instead take on any pain or heartache to keep my children and grandchildren safe from harm.

I love this...Thank You, Carla Kelly. I see this every day
when I read, and it reminds me of great promises.

Even when we are feeling broken, we are loved. It's hard to heal from a tragedy like this, but the hands of mercy and grace offer us a peaceful feeling of HOPE and FAITH in something bigger than ourselves. I know I am loved; I know He is aware of me, and I know what I must do to return with honor to Him and live with my family forever. There is a reason we are all here on earth, we are all children of infinite worth, and we are part of His eternal plan; we may not always understand what that means, but as we discover His unconditional love for us as individuals, we start to understand just how hard it is for Him to see us suffer, we are His children. I know I've had to turn to the Lord for peace on days when I no longer wanted to be here. Searching for your soul and discovering who you are, I mean the REAL authentic person you are, has been more fulfilling than anything I have learned in the past 51 years.

Find Me-Frozen Inside

Monday, SEPTEMBER 29, 2014

Find Me-Frozen Inside

There have been times when I've wanted to curl up and stay in the safety of a cocoon, much like a butterfly does. I've had days when I feel locked in a glass house with no way out and everyone watching. I want to fly free; I'm emotionally healing much slower than I expected. I'm trying hard to break out of the prison walls I've built around myself. I wish I had someone to talk to. I need to gain my grasp and be more authentic with people. I hide how tearfully hard it is for me not to be able to smile a big full smile; my frailties are being masked by a strong woman who has difficulty admitting her weaknesses.

I sometimes ache, trying so hard to hold back smiles or laughter for fear of what I look like to others. I caught myself wanting to laugh when I heard Ezra's huge belly laugh--he is so cute--but I caught my reflection in the mirror of our entryway and suddenly realized, "this is what other people see" This immediately took me down to a low I can't explain. I still feel so much Happiness in my heart & want to share it, especially with my grandchildren, but for some reason, I've let the adversary control my thoughts. The confusion contradicts what I feel inside, I don't understand it, so I do not expect anyone else to understand it. I'm trying my hardest to Live Happily. I love serving others; it warms my heart and lightens my load.

I love the Happiness Movement the United Nations agreed upon; the decision was made that the day will continue on March 20 of every year. I know and believe with all my heart that one person can make a difference, a rippling effect that can be wrapped around the hearts of people worldwide, regardless of race, culture, religious belief, or lifestyle. I am an ambassador of Happiness, but I still want to know if that contradicts how I feel on some days. I feel like I am on display; I see how people look at me and then quickly look away. I know because I, too, have done it. I've said on this blog that I don't believe people, in general, are vindictive or mean any harm; it's natural for a person to take a double look at something that is not what they are used to seeing. I just never thought I would be the one on display. I see them look, then look away and whisper to their friend, mother, or neighbor; they both look and quickly turn their back to me, usually because they know I have just seen what they did. The only thing that really holds me together is knowing He sees me, the REAL me--He knows I want to be me again; the sad part is because of what I've experienced, I know I will never be the same again. Although I didn't ask for this experience, I'm living it. I also realize that I have control over how I deal with the inner aching I continue to feel. I may not oversee my trials, but I have control over how I deal with them, and I choose to take it slow, understanding all that is expected of me, then proceed forward in faith and with a desire to continue to be the best I can be.

On the days when I work at UsAirways, the security guard always asks me, "how are you doing today, Monya?" and my answer is always the same "better than I was yesterday" I wrestle with what has been lost in my life, it's more than just dealing with cancer with and all the side effects. I carry a crushing weight on my shoulders when I cannot achieve my goals. I can't do this alone; my soul is tired and needs rest. I've pleaded for help so many times I seriously think I don't have any tears left to cry.
I'm giving my all, but sometimes I want to avoid hearing the answers. Saying I'm deaf is an understatement. I am so vulnerable right now; I know I need to be willing to put all my trust in the Lord's hands once more. I've been down this road before; I know this feeling. Taking a step forward is challenging, and it hurts to look backward. I want peace to speak louder than my fear. I have asked again, and again, and again "what am I supposed to learn" "What do you want me to do next?" When I'm finally ready to listen, I will go and be or do what He needs me to do.

I know this fear and pain that I am feeling needs to be turned over to the Lord, but for today, just for now, I'm frozen inside. I have no regrets; I've felt this pain before, and I will not bury it; I know I have to live it, and when I'm living in those shadows, He will find me, take me by the hand, and lead me to a brighter place.

LABELS: BLESSINGS, CANCER, FAITH, HEARING, HOPE, JOURNALING, LIVE HAPPY, LIVING, LOVE, MAYO CLINIC, PAIN, PEACE, SMILING, TRIALS 

Be a Light to those who walk in the Dark.

 

SUNDAY, JUNE 15, 2014

Be a light to those who walk in the dark

Today is Sunday; I wanted to go to the Kirkland Temple or a nearby church. I wanted to take the Sacrament, but today neither one happened. I am watching the conference from my laptop tonight and listening to the Slade Family music and the Sound of Music soundtrack.   My eye is getting worse daily, and I fear losing it altogether. I've been keeping it hydrated and covered with a patch, but when I take it off for some relief--all I see is cloudy...don't be surprised if the spelling on this post is wrong.

This is a little city--white coats everywhere.

I've been praying for a surgery date--tomorrow, I hope something will be accomplished; I'm ready. I want to get home and be with my family--Sundays are the nights we all get together to have dinner and family home evening; oh, how I miss them. Since we've been empty nesters, it's been tough for me; I love my family around--if I had my way, I would have them all move back in with us. I haven't seen my grandchildren in 2 weeks--I haven't seen my children in 2 weeks--Eric and I Skype, so I get to see him, Blake, and Chloe every day... I WANT YOU ALL TO UNDERSTAND THIS:  Eric and I had been planning a trip to Blake's mission in the Dominican Republic; when I was in the hospital, Eric wanted to cancel; when we decided for me to come to Cleveland, I told him he has to go on the trip with Blake no matter what, just cancel my flights. Of course, he was not going to do that. Eric wanted to be with me, but I had a powerful feeling he needed to go and spend some time with his son; Blake will always have those memories to look back on when we are gone. Still, he insisted on being here. I told him if he came here, I would cancel the surgery and go home, which made him think. He knows when I'm serious, so he and Blake left a couple days ago; I've been talking to them every day, thanks to modern technology. Chloe will be working with Dr. Kelly in the Dominican Republic, so this is good dad/son bonding time. I told Blake this morning to have a great time and not worry about me; all Eric and he would be doing is sitting around (just like me) waiting for the scheduler to call. Besides, the time I've had alone has allowed me to reflect, process, and get back on track with the spirit. I have had some life-changing spiritual experiences while fasting and praying for answers.

The two primary sources of most importance are my eye and to see if the bone is infected. I'm not sure about the look, but I feel strongly that my bone is good, with no infection. I do not leave the hotel without a patch on my eye; the wind blows a lot here, and it is excruciating on my eye. It gets really red. I have no peripheral vision out of the right eye. Not a good combination, deaf in the right ear, and can't see out of the right eye--boy, I'm a mess--
  
I thought today, the body is so perfectly created by our Heavenly Father. When something is not working correctly, we take note of it. I never realized how important it is
to be able to blink your eye--or how much people stare when they see someone who is not looking like the typical person should look.  
A little boy was with his dad and said, "Daddy, what's wrong with that lady's eye?" The dad quickly scooped him up, trying to distract the little boy with a flavor of ice cream; he asked his dad again. I looked at the little boy and said, "I have a boo-boo, and I'm just trying to cover it so it won't get worse."
I could see it bothered the boy's father to have me explain it. The little boy said a few minutes later to his dad, "what is wrong with her eye, dad?" No answer. I was trying my hardest not to laugh; I love little children and their ability to say it like they see it, but the father acting like I was an alien was a little bothersome. I waved goodbye to the little boy, and off I went. Seeing out of only one eye when I have the patch on is strange; every step I take is difficult because my brain tells me the curb is closer than it is; I look about as gracious as a bull in a china shop. I have run into walls, stepped on my own feet, dropped or grabbed for things that look closer or further than they really are.

The body is a fantastic creation; when it is not working as intended, all of what you learned must be retrained. My mouth does not work like it used to either (I know most people are happy about that one.) I can only eat tiny bites of things, they need to be cut up, and I can only eat on the left side. Sometimes, it is such a chore. My speech is OK, but hard sometimes to say my "P's and B's"  I have to hold my cheek out while I talk so people can understand. While I Skyped with Eric and Blake this morning, he couldn't understand what I was saying, so I held my cheek out. We laughed about that one. One thing I've learned in the past 5 years is that I am not in charge; Heavenly Father is testing my knowledge of HOPE,  in my ability to listen to the spirit and step forward with FAITH.

I'm still staring at the mirror  15 minutes a day and telling my eyebrow to move, my mouth to smile, and my eye to blink.....guess what? It's working today. I caught my eyelid flashing a couple of times while concentrating on it. When Eric and I first got married, he used to make me stand in front of the mirror and tell myself. "you are beautiful, you will succeed, and you are going to have a great day"  I felt weird doing that, but it worked--I've never met a more positive-thinking person than him.
My face will work again; I know it will--just need to practice a Christlike attribute--patience.

I always despise the beginning of anything, but I'm starting to embrace these changes. I've been told I will never look the same again, well, maybe physically, I won't, but all these changes keep me alive and open to new challenges. So now it's time for one more change: I will survive, and I will go forward no matter what the doctors can or cannot do. I live in a world full of people who feel forgotten; they are not alone; I want to find a way to help them find their happy places, despite whatever trials they face. I have given my heart and soul to HIM and the doctors; I want to be a person who gives more than she takes--listens with my heart--smiles with my eyes--and give back every day I breathe to help someone in need. I did a smile project while I was going through my chemo treatments--

http://monyabonbon.blogspot.com/2010/03/my-smile-experiment.html

I have a new project; I'm in the process now and will tell you about it when I get my results. My focus now is embracing the new Monya--still the same heart and personality; I'm trying to get refined around the edges. I have no doubt that my Heavenly Father knows the strength I have in me; I know when I kneel down for help, he WILL answer back. However, I also know from experience it is not always the answer I want. I've tried all my life to be a humble servant. I've felt healing power in my life and in the lives of others. I have a grateful heart; right now, I feel calm and quiet, and the stillness of what I'm feeling draws me near to HIM. It makes me want to be a better daughter of God by serving others and giving back what I'm learning. Even though I'm far away from home, I know there is someone I can always turn to, and He is just one prayer away. I realize this road ahead of me is long and hard but not devastating--I am concentrating on Happiness in my life--giving and sharing what I know can help others. I am still in this school of learning that we all call LIFE. When I look back at where I've been, I never saw these challenges in my future. I imagined it much worse--I have truly been blessed with a beautiful life, an eternal companion I call Frenchie, 4 exceptional children, and 2 of the best grandchildren who can light up my life with just a smile, I have FAITH in my future, I want to look back on all of this and see that I did what was right when no one was around watching--keeping my eyes on Eternity,  I want to be a light to those who are in the dark, I want to bring them into the light and see what I see--I am the only one who can decide how I live, and I choose to LIVE HAPPY.

Opposition in all things makes me stronger

SATURDAY, MAY 31, 2014

Opposition in all things makes me a stronger person.

Another week of decisions is not entirely clear; however, changes have been written on my soul. My heart is forever changed, and I will never be the same because of these experiences; sometimes, I wonder if it is better or worse. Mostly because I know when the storms come into my life, they seem to rest and stay ever-entwined in my heart until I figure them out on my own. When I say "on my own," all that means is I must come to a higher mountain, much higher than the hills I've been climbing. So many times, I have been down or in despair, but this time is the worst I have ever experienced and forced me to get my knees calloused as I begged for answers. I have often spent time in my car, crying aloud, wondering if I have been abandoned--no answers have come. Earlier this week, I received a beautiful note from a young girl who has become our second daughter. I was so touched by the wisdom she offered that it brought me to tears, and it was at that moment she needed to hear from me as well as from her. I have not been able to get this conversation out of my head--It's words I've told myself repeatedly, but somehow when I think of them, they don't seem the same. I've indeed seen and felt the truth of the love of our Heavenly Father. He's always there, right there, just waiting to see how in tune I am... not entirely on the same page this week--but the fact is, I am living proof that modern-day miracles happen every day--he hears every prayer, he knows every struggle--it must make Him feel sad or disappointed when my complaints come in handfuls. He thinks, "I've outdone myself with this young lady. She can't even see the possibilities and strength she has" I know this for sure, we can never enjoy the good in our lives unless we have felt the bad or the trials that life often brings. We can't enjoy joy without living through some life-changing events.

I will never deny what I have felt. Some of the experiences I've had this past few weeks are so sacred to me that I will not share them on this blog but will keep them sacred in a draft for my children to read--maybe it will redeem me from my last post--(I cussed) sorry about that--it was real and raw, should have given a disclaimer before you read.

I knew my family, including my sisters, would be nervous when they read my last post--BTW--I'm not planning on killing myself--just at that very moment, I wished it was me, and I was happy for that lady at Mayo Clinic, don't misunderstand and send me emails as to why I shouldn't write or say what I feel--I am no longer amused nor do I want to be entertained by your negative energy. I'll repeat it, please don't read this blog if you are not willing to listen with an open heart--this is not your journey--it's mine--and as the Lord has created us all different, we all have different philosophies of how to deal with life-changing events--this is my way, and I will not apologize for my feelings, and one more thing, I am a Christian woman, who rarely says anything other than what I'm feeling, this does not mean I don't also have to ask for repentance--every day--mainly for the uncomfortable feelings I get when I read your emails of criticism. Let me update you on this week's activities.

I began by getting my records from Mayo Clinic, and we picked them up....\we as in Frenchie's my driver. I am going to the Cleveland Clinic for my 2nd opinion. The doctor is renowned for his facial paralysis reanimation surgery for people like me--when his office received the first batch of records and pictures, they were amazed at what they saw--Debbie was friendly and more than helpful. I need to insert here that my friend Diana Lents is the person who knows how to get this stuff done; not only that, but she is a nurse and will be able to give me my infusions in my PICC line twice a day. If Cleveland Clinic does not work out, have a connection with a doctor from Baylor and Mayo in Rochester. I insisted on Eric staying home--I can keep him updated--I don't want to put him through any more than he should, especially when he needs to work. So now that I have read all my reports from Mayo, I understand more of what is going on. A quick synopsis: when I was three, my eardrum was broken due to a blow to the head. With that trauma came many surgeries as a child. I was told back then I would never get water in my ear--never did--at age 29, I had a mastoidectomy removed. From then on, I was told some repairs were done, and I could not go underwater--the first time I swam was in the Hawaiian ocean when I was 30 years old. Skip forward to now; after going through chemo and radiation, mostly the radiation, the beams stirred up some weird stuff in my ear. I went to see Dr. Barrs a year ago, and he suggested getting the tumor out and doing the Baja Implant. I refused at that time to do it just because I was racking up some surgeries at Mayo, and at that moment, I was not worried about it. Skip to October last year, and my ear began to drain again. I went to see Dr. Barrs it was determined at that point it would not be a promising idea for me to wait for surgery--we started on some anti-biotics to see how they may help; on December 10, Dr. Barrs went in and took out the tumor at that point he took some skin from my upper arm to create a new eardrum because it was completely blown out too. I took a 2 month of medical leave from work--My ear was not healing like we wanted it to. My ear was tested for an infectious disease. I was also given a neurology appointment and consult--nothing. After a couple of months on antibiotics, my ear began to heal; they were pleased with the outcome. Still, one more surgery on the schedule to get all the debris out and re-evaluate was successful. I had to return for another surgery--even after this one, it looked good--Dr. Barrs grafted skin from my upper arm to cover some spots beginning to show bone. All was good; I had one week to wait for my follow-up. Tuesday, the night before my appointment, something popped in the back of my head near my skull; an immense pain took over my body, and I did not want Eric to worry. I went into a different bedroom and hugged a pillow to scream inside. I crawled back into bed next to Eric around 5; I didn't want him to know anything was wrong. I then drove myself to the Mayo Clinic and was admitted immediately. My face looked like it had palsy, no feeling on the right side, and my speech was off-I also could not raise an eyebrow or smile from the right side. This was on a Wednesday; on Friday, I had another surgery--the pictures he showed Eric were nasty--it showed where he had taken more skin to graft around the nerve, but within a few days, it had gone gangrene and partially killed off some of the facial nerves. This is not palsy. Now we are at a deciding point as I visited in length with Dr. Barrs, I didn't like any of his options, and he was open for us to get another opinion, so we are. I realize there is a window of opportunity for nerves; we are asking the family, close friends, and now ward and stake members to pray for me and specifically for me to feel peace with whatever decision we decide is best. I want to include all my decisions with the Lord; he has not let me down yet. With the strength of so many people praying, I KNOW an answer will come, one that I will more than likely have to accept and forward in faith, hoping I can find some peace--My face will never be the same, but it was never perfect before anyway--I'm ready--well I should say I am ready today and hopeful with all the fasting and prayers going out for me--the spirit will strengthen me to another height and again prepare me for what it is the Lord has in store for me, and what I'm learning will help others, even if it gives them a bit of strength to go on for another day, then do it again and again until life becomes a school of learning and a place where they too can pay it forward.    

black dead skin December 10,2013

After 1st surgery in December--impressive staples, huh?

January--looks like an infection.

April 28th Surgery

One week after my last surgery, in for a follow-up, my face has already begun to take on a new look.

THIS IS THE SPECIAL TEXT I RECEIVED THIS WEEK--THANK YOU, I NEEDED IT.

Your kids deal with situations like this very differently. Everyone was a mess. Everyone was crying. We all thought this was it. But your kids are also extreme. They get that from their mom. They are very good at keeping face in a challenging situation like that. I think everyone just thinks there will always be more time with you. That you'll keep fighting because you have for almost 5 years now! We all love you so much; many people are rooting for YOU. There are still so many people who need to hear your story and feel inspired. You gave another chance a few weeks ago; instead of looking at it like another part of you missing or another surgery, think of it as another chance from Heavenly Father. You still get to be here on earth to see more grandkids, see Mexico again, watch your girls get pregnant, see your sisters, see more places with Eric, and sell more Nerium!!. I'm sure there were days 4 years ago when you went through chemo and wanted to die. But can you imagine if your wish was granted then?? You would have missed all of your kid's weddings, Ezra and Paris! I'm sure there were days when you were a little girl and wanted to die. When the pain of your family wasn't going away. But look at your life Monya. Look at all the precious joys you've been given. Life sucks, but with the bad, you get pleasure tenfold. I LOVE YOU. PUT ON YOUR FIGHTING PANTS AND KICK BUTT. I know how hard this is for you. You're handling it all so well. You can do it. Some so many people support you and love you. And who will love you no matter what? You came very close to dying a few weeks ago. So the only thing that will get you through this is focusing on why you were kept here. And the things that keep you going. So many grand babies you don't have yet. So many things with your kids/adopted kids' lives that you can't miss. My heart is so broken that you underwent yet another trial. I want you to be relieved of the pain and misery more than anyone. You're here for a reason; you're still fighting for a reason.

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