Brain Scan at Mayo Clinic

 

FRIDAY, NOVEMBER 28, 2014

Brain Scan-Mayo Clinic

I arrived at Mayo Clinic early this morning, and can I just say that the people who drive to work between 7–8 am every day ... I am so sorry. It was stop-and-go the entire way to Mayo Blvd. I will be getting brain scans every three months. All that really is is an MRI, and 45 minutes of pounding and hammering on my brain--I survived. Not my favorite thing to do, but necessary for Dr. Barrs to see what is going on between my ear and my brain ...not much.

Let me explain this, doozie. When I arrived at the hospital, they took me in to prepare me for the scan. Included in the visit is an IV. I warned the nurse not to use anything less than a twenty-two needle and to not use my left arm, wrist, or hand. She smiled and assured me she knew what she was doing. I then announced, "Please listen to me, I know ..." then she plunged the size 20 needle into my left hand, and immediately I concluded, "you just blew out my vein" The nurse then said, "How did you know what size needle to use?"  "This is not my first rodeo. After 5 years of being poked and prodded, I've learned the left side has no veins left. If you had let me finish before you  stuck me, I would have let you know; my experiences have taught me" She then advised me, "Since you've had a port on your right side, you shouldn't use the right side, I'm sure your oncologist has told you not to use the right side for at least 10 years since your lymph nodes were removed?" "Um, no, he has never told me anything like that" "Who is your oncologist?" I looked up just in time to see a familiar face, and she recognized my face, also. I said, "Lindsay, right?" she hugged me, "Yes, how did you remember my name?" "I'm not sure, I just did, but I'm not sure why or who you are." She said, "I was your nurse on the fifth floor when you had your nerve go dead. How are you doing?" "I am fantastic, except for this blown-out vein ...... just here for a brain scan" "Oh dear, I'm sorry about the vein. Let me see if I can get a smaller needle and use the other hand." The previous nurse disappeared, and Lindsay finished. What a great surprise; I love running into the great staff who have served me over the years.

I love Mayo Clinic because they always have my results on the same day. I ate lunch, then met with Dr. Barrs. He is excellent; he always has a big smile and a sweet, compassionate heart. The brain scan results looked good, the cholesteatoma has no regrowth, and there was a little liquid build-up, but nothing for me to worry about. Dr. Barrs talked to me about facial paralysis; he wanted to know how I dealt with it. It's hard to say I'm OK with it; I'm not. Of course, I wish things were different; I explained I am trying to deal with 'being OK' if the nerve does not fuse back together. I added I'm not used to people looking at me and then quickly looking away. I have gotten to the point that I look away now, so they will not have to be uncomfortable. He then looked at me with a big smile and acknowledged that what I felt was expected but that he loved who I was my personality, and my heart. It was a good boost for me. I needed to hear exactly what he had to say.

I will be going to Cleveland Clinic next week for some more surgery on my eye; I think when I get home, I will finish all the other surgeries at Mayo Clinic.

Trusting

 

SATURDAY, NOVEMBER 15, 2014

Trusting

The worst pain a mother can feel is knowing her children are struggling with something you cannot understand or comfort them.
There have been times when my doubt has been as vast as the ocean, feeling like the waves need to sweep me away, not wanting to face the pain. Our oldest daughter Kayla and her husband Jeremy have two gorgeous boys. Recker is almost 5 years old. It's so hard to believe how fast he is growing.  Ezra will be two in February. He's been a spunky, smiley fun baby boy.  These little angels have brought me more joy than I ever thought imaginable.  Their laughter and unconditional love are contagious.

Ezra's squint eye..so cute

Ezra love

When Recker was 14 months old, he was diagnosed with Autism. He is non-verbal but has taught me to speak with my heart and eyes. The past five years have been so difficult for Kayla and Jeremy. Something I don't even try to understand. All I understand is that if it were not for Recker, I would not have made it through some days when I could barely get out of bed--he is my sweet baby boy, who saved me from going to a very dark place.

Two days ago, Ezra was also diagnosed with Autism. I was so sure he was fine. He was making animal noises, something Recker never did. He could point to the various parts of his body. Again, I don't remember Recker doing that. Over the past few months, Ezra has started to regress. Although Kayla tried her most demanding to prepare us, it could be true. I just didn't want to believe it. Ezra was doing everything differently until he didn't; gradually, he became distant.

Kayla did everything differently with her pregnancy, thinking it might be different. Ezra didn't get his shots like Recker did. She did everything differently--Now we know, his diagnosis is a shock to Eric and me, but not so much to Kayla and Jeremy, who I can honestly say have tried to prepare us for.

Recker School Picture--I love this.

Recker lives in an extraordinary world--I wish I could go
there with him.

When I found out, I just wanted to scream, "WHY?" I still do. I am hurt, angry, sad, and blessed all at the same time. These mixed emotions have rocked my little world and will take a few days, weeks, or months to get used to.  I just want Kayla and Jeremy's dreams of having a typical child to come true. This does not mean they do not love their boys. They love them more than life, but not hearing your child say "mom or dad" is heartbreaking.  They need time to mourn. We all do.

I don't in any way, shape, or form believe these boys are doomed and will not have a future that is anything less than we, as a family, teach them. I know they can and will be, such a blessing to our family and others. In fact, through their journey, they will be the ones who, against the odds, will teach us. Through their sweet spirits, they will guide us so much more about compassion and tolerance than we could ever learn in a book.

So, it leaves me with doubt, fear, and the unknown, but I know one thing for sure, and I can never say this enough, Heavenly Father sends those sweet boys to our family for a purpose.  We may never know what that purpose is but we have decided the reason does not matter as much as making the journey with them memorable and happy.  Autism is not fun. It is misunderstood.  I know so little about why a child is diagnosed with Autism. All I really know is that nothing has changed for me. I love them unconditionally; I will take them by the hand as they lead me and guide me back to where I want to be ... HEAVEN.

Dr. and Mrs. Peter Kreymerman is a DADDY

 

SATURDAY, OCTOBER 3, 2015

Dr.Peter Kreymerman is a DADDY

I drove to Mayo this morning to see Dr. Peter Kreymerman, so looking forward to him telling me I could pick up Recker now and that I could get rid of the BRA ... Instead, I was shocked when a different doctor walked in, mostly because he looked like he was 12 years old ... just kidding I think more like 21 ... maybe!

Dr. Peter Kreymerman and his wife had a baby girl on Friday, November 5th at 4:59 p.m. I'm not sure if I can post her name but she is a healthy 6 lbs. 3 oz. baby girl. I got an email from Heather his assistant, and she sent pictures, however, I would never post pictures without permission from Dr. Kreymerman, but I can tell you that she is beautiful, with lots of dark hair dressed in pink. I am quite certain they are not getting much sleep, but that the baby is getting lots of love and attention. There is nothing like having a brand-new baby. They always bring such a sweet spirit to the home. Congratulations Dr. and Mrs. Kreymerman

The truth stings

 

THURSDAY, NOVEMBER 6, 2014

The truth stings

 I immediately looked to my left when I walked into Mayo Clinic hospital today. This is where I watched a woman die while the paramedics tried to save her. I remember being jealous, and I wished it had been me. So much has happened since then, I'm not afraid to die, but right now, I'm enjoying my family.

Mayo Clinic "the place."

The nurse came in with Dr. Freeman, asked my name and birth date, and said, "what are we doing for you today?" I replied, "hurting me to take away my pain?" How weird is that statement? They both, not knowing how to respond, said, "where are we going to hurt you today?" laughter "In my hip and lower back" He gives me trigger shots, and when he does, he jiggles the needle around to make sure he gets the entire area around where the initial pain is. Every time he does that, I want to come off the table. Dr. Freeman says, "Almost done; I'm sorry it hurts." I haven't seen him since my surgery in the Spring. 

Recovery, drinking my daily routine

I have been staying busy, working at US Airways; I have the best management and supervisor I could request. They really care. I'm working on being Happy, trying to deal privately with it; if my face must stay the way it is right now, will I be OK with that? I don't expect anyone to understand my feelings, but I am sometimes lonely in THAT world. I have researched partial facial paralysis, gone to the library online, and tried to reach out to anyone who has suffered or is dealing now with this--NOTHING--But I understand a little more about what Dr. Barrs was talking about when he said this is rare for a nerve to just die, with no apparent reason. This is not like having a stroke or Bells Palsy, where the nerve is damaged and WILL eventually snap back; this is a dead nerve, which means it will not live again or regenerate.

This is what a dead nerve looks like--, and it's mine.

Going to Cleveland Clinic to see Dr. Gastman was to take a nerve from my ankle and replace the dead nerve in my head with a good nerve, hoping it would grow together with the nerves on either side. If this works, we will not see any results for a year, and I will get 30% of the facial movement back. If it does not work, they want to cut along my hairline, pull my face before, take the nerve from the left side of my head, connect it with the one on the right, then wait another year. I don't want to go through that again. Going back and forth to Cleveland Clinic is difficult for me; not getting results or answers is frustrating and want to say "WHY" is sometimes realistic.

Hearing for the first time in 48 years was fantastic; I heard things I'd never heard. Sounds like most people I know take it for granted. That first night coming home was one of the most spiritual experiences I've ever had; without a doubt, the Lord was smiling down on me along with Colby. What I wasn't prepared for was going to work the next day, ready to share my exciting news, which quickly turned to sadness. Hearing what people say about me hurt me; I knew they would not intentionally hurt me. In fact, none of them knew I could listen to it, and they all were saying it out of love for me--still, the sting of truth hurts. I've been able to get used to going to the store and watching people quickly look away when we make eye contact, but now hearing opinions, I am the one looking down and away before eye contact is made. I thought I was going to make new connections and share in the beauty of small sounds, be able to give the gift of not taking for granted the sound of a pen writing on a piece of paper or the clicking of the keys on the keyboard as we making reservations, the fact that I could for the first time be able to turn the phone volume down. Instead, what I heard was, "I feel so sorry for her," "She is so strong," and "Have you ever read her blog?" "I don't think her face is ever going to be the same" "She used to have such a beautiful smile" tear ran down my cheeks as I sat and heard these words coming from; I'm not sure who, as I am still trying to distinguish where sounds are coming from. We have cubicles where we sit. I quickly wiped my tears so no one could see and took my BAJA off. I haven't worn it to work since that day. 

So proud of Mayo Clinic, this Cancer Center has been in the
works for years, it's getting done, they will have a proton
radiation beam, the only one in the Western part of the
nation. Proton beams are used to radiate certain cancers and
can pinpoint to 99.9%  

I am the one who gets to decide what my destiny is, what my life will be, and who I choose to share my light with. I love my coworkers, family, and friends, but I must be OK with 'me.'
I will decide where I end up, I'm doing what I can to figure all that out, and until I do, I can't wear the BAJA. 

    I'm taking it slow because, sitting right now, I'm feeling things I've never felt before. My heart has never beat as hard in my chest as when wearing the BAJA. I feel blessed to know the people around me are my friends; they are kind and loving; at least nothing wrong was said--just the truth--the truth I was unprepared to hear. I need to work on myself and my confidence, eliminate the negative and concentrate on the positive. There's a fire in me that I can never deny. I know He lives, and He loves me. My faith and hope over the years have given me the peace and strength to endure and enjoy the sweetness of life. However, I've tasted the truth, and my heart will never be the same. That is not necessarily a sad thing. I needed a taste of reality. It will take some time to process what He wants me to learn.

The moon is beautiful tonight from my balcony in my bedroom; this picture does
not do justice. It is HUGE, YELLOW and
GORGEOUS

I will wear the BAJA on the Sunday before Thanksgiving to hear Stephen Phelps and the choir sing Come thou Font of every Blessing. I have so much to be grateful for and have been blessed with a good life---music touches my soul and helps me to heal. It's just a more protracted process this time.

Halloween 2014

 

SATURDAY, NOVEMBER 1, 2014

Halloween 2014

Recker Loves Papa and Pizza

Brian and Kaitlyn--Old Couple--She's pregnant.
How'd that happen?

Brad and Betty Walmart Greeters
Haleigh & Scott

Ezra the Lion

Something Amazing

MONDAY, OCTOBER 13, 2014

Something Amazing

THIS WEEK, I RECEIVED EMAILS ASKING ME TO EXPLAIN MORE ABOUT PAST POSTS. WILL EXPLAIN NOW.

I HAVE BEEN DEAF IN MY RIGHT EAR FOR 48 YEARS DUE TO A BLOW TO THE HEAD AT AGE THREE; FROM MY BIRTHFATHER (COLBY); IT HAPPENS TO BE THE SAME EAR I'VE HAD MULTIPLE SURGERIES ON THIS YEAR. 

MY LEFT EAR IS MY 'GOOD' EAR. EVEN THOUGH THE BAHA IMPLANT IS ON THE RIGHT SIDE, IT TRANSMITS SOUNDS WAVES TO THE GOOD EAR ON THE LEFT TO IMPROVE MY HEARING. MY RIGHT EAR IS NOW COMPLETELY EMPTY, WITH NO INNER CANAL, NO EARDRUM, NO NOTHING; THE DOCTOR TOOK SKIN FROM MY HEAD AND MADE A NEW-LOOKING EAR FOR ME.

Today, something unique happened to me. I had appointments at Mayo Clinic, and I met with Kelly Conroy in the ENT department to have my Baha hearing device finally connected to the implant. I was not prepared for what would happen; I usually go to Mayo Clinic without thinking much about why I'm there or who I am supposed to see; I just don't let my mind think about it unless I'm going to the third floor then I need to prepare myself.

I have met with Kelly before for hearing tests and to be fitted for my Baha, but it's been a year since my implant was placed, and so much has happened since then. The Baha has not been on my mind. Today, I was blessed with a Tender Mercy from Heavenly Father, which I needed. I now have a new person to love at Mayo Clinic, I will never forget today, and I am so grateful Kelly Conroy was the one I shared this moment with; she was so compassionate and loving.

Kelly placed the device on my implant and then adjusted her computer to customize the hearing device to my needs. What happened next was amazing; I wish I had it on video, or Eric could have shared it. I could hear everything clearly and crisply when Kelly activated the device. I smiled, and we sat and talked for a while so she could make sure everything was working well. We both cried as I explained some of my emotions this year. This was not even the impressive part. Once I got to my car, I could not believe the sounds.

 
I opened the door to get in the front seat, and when I started the car, my music was so loud I quickly turned it down, smiled, and backed the car up--and the sound of putting the car in reverse was something I had never heard. 

As I drove down the beeline highway, I noticed a man walking; I pulled over and asked him if he needed help. He assured me he had AAA on their way and thanked me. I wondered, "why is he talking so loud?" I was overcome with emotion; I had to pull the car over a few miles away, get out and walk through the wildflowers; never had I seen anything more beautiful. I looked at the sky, brilliant blue with fluffy white clouds, and cried. I heard a bird chirp; it was beautiful. I thought I knew what that sounded like all these years, but today it was more apparent than I had ever felt or heard it. 

I could feel His love for me. He loves me, He really, really loves me, and not only me, but He also loves my biological Father, Colby Belshe. I could feel his presence; this was more than an emotionally draining day for me, but at that very moment, standing with my arms high, twirling in the Arizona desert, I could feel that finally, Colby was happy; his daughter could hear. 

Colby never could forgive himself for being the fault of my deafness, and I forgave him. I don't remember being angry with him; I only knew partial hearing. I told Colby many times that I didn't blame him, was OK, and didn't blame him, but even to his death, he took that guilt. Today that is over for him; he watched me, I felt him, and I know he can now move on. Thank you, Heavenly Father, for such a beautiful gift you have given me.
I picked myself up, got back in my car, called Eric, and could not believe how loud he was; I smiled, tears running down my cheeks.

When I got home, this is when the real magic happened. I opened the door, and I heard the doorknob turn. I smiled. When the door shut behind me, I screamed. It was so loud, it scared me. I did the same thing when my phone rang, I had "Happy" as my ringtone, and I about jumped out of my skin, but I smiled. Walking across my wood floors, I heard every step. In the kitchen, I opened the microwave and shut it several times. I did the same thing with the refrigerator, and I smiled.

When my hand touched the staircase to walk up, I heard my hand even softly dragging, and I smiled. I sat on my bedroom floor weeping, alone, just as it should be. I'm sure it was not too pretty. I could even hear the carpet as I ran my hand across it; all I could say was thank you so much for this unexpected miracle. I pulled the string on the dental floss tonight, and the sound was nothing I'd ever heard before; I did it repeatedly until the container was all gone. Turning the pages of my scriptures was terrific; I listened to every crinkle and smiled. I sat on my bed in awe of what my Heavenly Father had blessed me with at such a critical time. I wanted to shout at the top of my lungs, HE LOVES ME. I don't think I have smiled like I did today for so long, and even though it was a half smile, I didn't care; I couldn't help it. Nothing, and I mean nothing, is as beautiful as being able to hear everything; all the creations He has created for us to see, hear, feel, and smell we take for granted.
I can't wait to hear more things. I immediately turned my primary music on, my favorite song has always been My Heavenly Father Loves Me...I cry every time I hear this song.

My Heavenly Father Loves Me:

Whenever I hear the song of a bird,
or look at the blue blue sky,
whenever I feel the rain on my face
or the wind as it rushes by.
Whenever I touch a velvet rose
or walk by a lilac tree,
I'm glad that I live in this beautiful world,
Heavenly Father created it for me.
He gave me my eyes that I might see
the color of butterfly wings,
he gave me my ears so that I might
hear the magical sound of things
He gave me my life, my mind
my heart, I thank Him reverently
for all his creations of which I'm
apart, yes, I know Heavenly Father
Loves me.

Today these words mean more to me than ever before. I can't help but think that Heavenly Father has been waiting for this day, preparing me, and refining me, preparing Colby, too, as he has suffered with this guilt for so long. I am happy for him too. I cannot stop crying. I am so blessed the tears are flowing like a river with no end in sight. I just want to open and close things. I want to hear my grandkids laugh, oh I can't wait for that; I thought I loved those belly laughs before, but I have a feeling as I get used to this new blessing, I am going to continue to have tears, learning so much of what we take for granted. So, if you see me tear up, I'm OK. I'm just hearing something new and enjoying it for the first time. I don't know if I can say thank you enough to Him who gave me this gift today, and I know He is smiling down on me too. I've been so lost these last few months, trying so hard to understand what I am supposed to do? What am I supposed to be learning? I will continue to ask, but not today. I am grateful this is a feeling I will never ever forget.

LABELS: HEARING, HOPE, KELLY CONROY, LOVE, MAYO CLINIC, PEACE 

Trust in God

 

SUNDAY, OCTOBER 12, 2014

Trust in God

Another night of insomnia; I cannot stop thinking about The Wentworth Family tonight. Our girls danced together for years; Darbie and Sierra have always had a special place in my heart, especially offering their personal prayers for me when needed. As I knelt to pray tonight, I asked God to wrap his arms in and around their hearts and comfort them with His love. I have perfect knowledge that their son Buddy is being watched over and taken care of, he is in a peaceful place that is nothing like earth, and he will be with his family again.

I recently received this bookmark from a dear friend, who I admire and love for her strength and love of the gospel of Jesus Christ. She, too, lost her son; it just never seems fair that a child should go to Heaven before their parents. Living in this world, we face so many challenges, and what makes it all worth it is knowing the Savior died for us; we have knowledge of the Atonement. We hear, "The Lord never gives us trials we cannot endure"  I have had some bumps along the way, especially in the last few years, but I am grateful the Lord knows I could not handle losing a child or grandchild. I'd instead take on any pain or heartache to keep my children and grandchildren safe from harm.

I love this...Thank You, Carla Kelly. I see this every day
when I read, and it reminds me of great promises.

Even when we are feeling broken, we are loved. It's hard to heal from a tragedy like this, but the hands of mercy and grace offer us a peaceful feeling of HOPE and FAITH in something bigger than ourselves. I know I am loved; I know He is aware of me, and I know what I must do to return with honor to Him and live with my family forever. There is a reason we are all here on earth, we are all children of infinite worth, and we are part of His eternal plan; we may not always understand what that means, but as we discover His unconditional love for us as individuals, we start to understand just how hard it is for Him to see us suffer, we are His children. I know I've had to turn to the Lord for peace on days when I no longer wanted to be here. Searching for your soul and discovering who you are, I mean the REAL authentic person you are, has been more fulfilling than anything I have learned in the past 51 years.

El Casa De Monya

 

THURSDAY, OCTOBER 2, 2014

El Casa De Monya

I spent most of the summer months in the Mayo Clinic hospital for a few weeks, then at Cleveland Clinic for seven weeks. Eric, I, Blake, and Chloe had planned a trip to the Dominican Republic, where Blake served his mission. We soon realized I could not make that trip, but I begged them to please go; my heart told me they needed to visit the people who loved my son for 2 years as he served, and they helped him. Oh, how happy I am today; I received this video and article from someone I have never met. I was highly emotional watching it. The impact it had not only on myself but also on Eric. It must have been quite an experience because they have not talked much about it to me; Eric is a compassionate giving man but is quiet about it; he never shares these types of things with others; he does them with a pure heart, not expecting a high five so to say.
Here is the link if you would like to watch http://colormyworldkids.org/2014/06/19/color-my-world-home-announcement-the-alamonte-family/

To these gracious people and my husband for having such a giving heart, I am overwhelmed and grateful to you tonight as I watch this. The tears are flowing, I am so thankful to have met you two years ago when we sat at your dinner table, and I am honored that you would dedicate your home to me. Thank you for watching over my son while he was away from his mama dealing with cancer; seeing your love and respect for our son during this challenging time is so touching, and I cannot thank you enough. I will be there with you again one day, and we will break bread together in joy and happiness.

Find Me-Frozen Inside

Monday, SEPTEMBER 29, 2014

Find Me-Frozen Inside

There have been times when I've wanted to curl up and stay in the safety of a cocoon, much like a butterfly does. I've had days when I feel locked in a glass house with no way out and everyone watching. I want to fly free; I'm emotionally healing much slower than I expected. I'm trying hard to break out of the prison walls I've built around myself. I wish I had someone to talk to. I need to gain my grasp and be more authentic with people. I hide how tearfully hard it is for me not to be able to smile a big full smile; my frailties are being masked by a strong woman who has difficulty admitting her weaknesses.

I sometimes ache, trying so hard to hold back smiles or laughter for fear of what I look like to others. I caught myself wanting to laugh when I heard Ezra's huge belly laugh--he is so cute--but I caught my reflection in the mirror of our entryway and suddenly realized, "this is what other people see" This immediately took me down to a low I can't explain. I still feel so much Happiness in my heart & want to share it, especially with my grandchildren, but for some reason, I've let the adversary control my thoughts. The confusion contradicts what I feel inside, I don't understand it, so I do not expect anyone else to understand it. I'm trying my hardest to Live Happily. I love serving others; it warms my heart and lightens my load.

I love the Happiness Movement the United Nations agreed upon; the decision was made that the day will continue on March 20 of every year. I know and believe with all my heart that one person can make a difference, a rippling effect that can be wrapped around the hearts of people worldwide, regardless of race, culture, religious belief, or lifestyle. I am an ambassador of Happiness, but I still want to know if that contradicts how I feel on some days. I feel like I am on display; I see how people look at me and then quickly look away. I know because I, too, have done it. I've said on this blog that I don't believe people, in general, are vindictive or mean any harm; it's natural for a person to take a double look at something that is not what they are used to seeing. I just never thought I would be the one on display. I see them look, then look away and whisper to their friend, mother, or neighbor; they both look and quickly turn their back to me, usually because they know I have just seen what they did. The only thing that really holds me together is knowing He sees me, the REAL me--He knows I want to be me again; the sad part is because of what I've experienced, I know I will never be the same again. Although I didn't ask for this experience, I'm living it. I also realize that I have control over how I deal with the inner aching I continue to feel. I may not oversee my trials, but I have control over how I deal with them, and I choose to take it slow, understanding all that is expected of me, then proceed forward in faith and with a desire to continue to be the best I can be.

On the days when I work at UsAirways, the security guard always asks me, "how are you doing today, Monya?" and my answer is always the same "better than I was yesterday" I wrestle with what has been lost in my life, it's more than just dealing with cancer with and all the side effects. I carry a crushing weight on my shoulders when I cannot achieve my goals. I can't do this alone; my soul is tired and needs rest. I've pleaded for help so many times I seriously think I don't have any tears left to cry.
I'm giving my all, but sometimes I want to avoid hearing the answers. Saying I'm deaf is an understatement. I am so vulnerable right now; I know I need to be willing to put all my trust in the Lord's hands once more. I've been down this road before; I know this feeling. Taking a step forward is challenging, and it hurts to look backward. I want peace to speak louder than my fear. I have asked again, and again, and again "what am I supposed to learn" "What do you want me to do next?" When I'm finally ready to listen, I will go and be or do what He needs me to do.

I know this fear and pain that I am feeling needs to be turned over to the Lord, but for today, just for now, I'm frozen inside. I have no regrets; I've felt this pain before, and I will not bury it; I know I have to live it, and when I'm living in those shadows, He will find me, take me by the hand, and lead me to a brighter place.

LABELS: BLESSINGS, CANCER, FAITH, HEARING, HOPE, JOURNALING, LIVE HAPPY, LIVING, LOVE, MAYO CLINIC, PAIN, PEACE, SMILING, TRIALS 

Find strength in Adversity

 

TUESDAY, SEPTEMBER 23, 2014

Finding strength in Adversity

I just can't seem to sleep tonight. I am in a hotel room in Dallas, listening to my favorite VonSlade family sing to me and then Josh Menden--I am tearful today. I have felt the Lord's love and trust in His plan for me. I have seen angels with different faces lift me up. Sometimes those angels come at the most unexpected times; today was one of those days. A man named Kym was my angel today, and I know the Lord directed him to me for a purpose. Kym has no idea how he helped me; I'm not sure he had any intention of helping me, but today because of Him. I learned that I DECIDE which life I want to lead; I am authoring the story of my life and getting to decide how it will end. Don't worry; it's a Happily Ever After completion.

Many of my readers know me, some not personally, but through my blog, you have listened to my stories, and we have laughed, cried, and ranted together. Sitting in this hotel, my heart is beating in my chest, and it's hard to hold back the tears; my faith has taken deeper and stronger roots than I ever imagined I could. I have never felt the peace I am feeling right now; I will never be the same as I was 5 years ago; there is no looking back; I am forging forward. I know what HOPE is, and I have so many good reasons to believe through my Faith and Hope; even if I am not entirely healed when a person looks at me with the naked eye, I am beginning to recover from the inside out, He knows the strength I have, and the purpose of all things happening in my life. Everyone around me who loves and genuinely cares for me sees the heart inside me, but I feel bad that they must look at me with anxiety and fear of hurting me. I am dealing with this adversity differently than when I was first diagnosed with breast cancer. I'm not sure why, mostly because I, too, have bought into the belief a person's physical appearance is the first thing people see ... the face. I took my smile for granted, and I miss it. I want to laugh again, out loud with my friend Jenny; I want to jump on the Hotel beds and act like little girls again--but I fear that childhood innocence is gone; I know too much; I've seen and felt too much to ever go back to who I was before the paralysis.

I know the best is yet to come; I can look forward with faith, knowing I am responsible for being the REAL authentic ME, which hasn't changed. I wake up every day grateful for one that I woke up and two that it's always a good day to have a good day. I've climbed towering mountains and stumbled over a few hills; through every bend in the road, I feel like I had done what was right when no one was around; I have lived with integrity. I know my family, the girls, Chloe, and the boys, including Blake, Brian, Scott, and Jeremy. Eric, Recker, and Ezra are number one in my life. I want them to learn to open their hearts and listen harder, look for a good purpose, help others who have less than us, give a smile, or open a door, say please, and thank you--when we do this together, we shine bright for the world to see that we can make a change, each of us day by day, tiptoe by tiptoe those good deeds when practiced daily, will soon turn into HUGE GIANT steps towards the YOU you were meant to be. Choose your destiny, and remember your children are watching you; the choices you make, they will mimic because you are their HERO.

Making Connections

SUNDAY, SEPTEMBER 14, 2014

Making Connections

Ford Trimotor 

Today while working at USAirways, I received an incoming call from the cutest couple. They were each on the phone line, one in the kitchen, and one in the bedroom. They made a reservation with me, and the gentleman asked me what aircraft it was; I told him it was a CRJ. Then he told me a story about when he was around twelve (born in 1928). He and his friends were playing in a farmer's harvest, and the owner approached the boys and asked them if they would like to spin in his Ford Trimotor airplane. He said to me, "I don't think I ever did tell my parents that story" When I asked him if it was because he thought he would be in trouble, his response was so sweet; he said, "no, I knew they would not be upset, I didn't tell them because I didn't want them to be sad knowing they would never in their lifetime have the opportunity to fly" His wife was on the other end of the phone with the kindest voice saying "Oh darling, we need to let this girl get to work"  I loved to hear her laugh, while I was preparing their itinerary they were talking as if I couldn't listen to them. It reminded me of Vi and Ray--I asked them how long they had been married, and they laughed; both were so cute. He said he was around sixty-eight, but they had known each other since childhood.
This was such a polite conversation; I loved it so much because they had no idea what I looked like; a voice on the other end of the phone was kind and considerate, as they were with me also.

They were going to the funeral of their son. " I'm so sorry; it must be a difficult situation to have your son pass away before you do," she said "no, he was old,  lived a good life, and was struggling with cancer the past few years, so we are glad he is no more pain, I wouldn't mind visiting him soon"  Then they laughed again....under normal circumstances I would have felt uncomfortable, and wondered what to say to that, but I didn't I fully understood.

This has been a tough week for me, I never thought It would matter to me what people think about my face, but it does. I went to a Spanish-speaking meeting with one of my partners. Have you ever felt like someone was looking at you? You know the feeling I'm talking about; you want to look back at them to see if your feeling was right. I did; I looked at these two women who were talking about me in Spanish; I know this because the older woman looked at me and whispered something to her daughter (it was her daughter, not cheerful). Then they both looked at me, and the mother made this extraordinary face; again, they both looked at me. At that very moment, I was more vulnerable than I had ever felt. I could not concentrate on the speaker after that happened; some of that was because it was entirely in Spanish. I wanted to leave, but I didn't. I stood tall and made it through. I don't see any changes in my face, and I know when I smile, it is crooked, so it looks different. I love to laugh and smile--that has been temporarily taken away from me.

I know I will never look the same; I can recover and reprogram my brain, but I will re-form into a different person--hopefully better, stronger, and happier than I have ever been. I trust in the Lord and his plan for me; it's so hard on days like today when the reality of how I look is slammed in my face by others. I have a new journey that I can recover from. Hopefully, one day I will be on the other end of a phone conversation making a reservation and be able to smile with my heart as this couple did.

LABELS: CANCER, JOURNALING, LIVE HAPPY, USAIRWAYS